Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Monday June 1, 2009 4:00 pm -...
marfans_support_and_c...
Jun 1, 2009 7:26 pm
6536
National Marfan Foundation Early Bird Deadline is June 15! When is the last time you were in a room with hundreds of people who all know about Marfan syndrome?...
my name is casey yowler I have marfans I have been having chest pains pretty bad for the last 2 days I went to the hospital they did some test but they said...
... Hi i get bad chest pains all the time im told to ignore them as its nothing serous its just the electricity going though my heart its good you went to...
... Im supposed to be but I dont take them I didnt know that about chest pains though thank you the doctors down here wont tell me nothing like that I called...
... Marfan Syndrome is a very serious disorder...... I am very involved in the treatment of my disorder.... When you say " they did some test" makes me think...
Someone in this group helped me with good information when I was applying for my disability. I received it a few years ago but I have a couple of questions...
Lee there is a link to Jon on the group website. If you don't find the link let me know and I can find his email for you, I know most of it but don't want to...
Good to hear from you again Casey, although wish it wasn't because of chest pains! To expand Heather's comments a little bit, when you feel it is bad enough...
Casey, I agree with what Marsha has to say but, I was also concerned to hear that your cardio wanted to see you the next day. Did you go and what did they have...
Hi There.. I am in the hospital as Marsha mentioned.. went in a week ago with chest pain that radiated to my back. It lasted about a minute , was very...
National Marfan Foundation 25TH ANNUAL CONFERENCE ON MARFAN SYNDROME AND RELATED DISORDERS In consideration of these difficult economic times, we are extending...
Yahoo Groups then search for marfans_support_and_chat is what I do, then to the side there is a label called links once the page comes up. The group page has...
I wasn't sure if that was his email address and I never heard back whether it was or not. I guess I'll go try that. ... From: Iowa Marf <iowamarf@...> ...
please open mail from me FayDoneAway507@... it is info on Jons Marf site ... From: Lee Parks <wt_lparks@...> Subject: RE: [marfans_support_and_chat]...
Hi Kim...I hope you have a nice day... Thank's for nice e-mail...Take a care..Bye now..See you.. ... From: kmbrly_woodard <kmbrly_woodard@...> Subject:...
Hi everyone We live in New Zealand where losartan is fairly new. A friend of mine has been told that they would like to put her 10yr old daughter on...
If you don't have Yahoo messenger download it. When you have it sign in and usually I open (iowamarf) but tonight you'll need to contact phoenix_rising16 or...
I wish them all the best but my life took a whole 360 and I have no clue what will happen to me now. ________________________________ From: Iowa Marf...
At about 10:30 am central time, my mother passed away. I have been hanging out in KY for the past 9 days, so I did get some time with her before going, and...
Scott, I'm so sorry for your loss, but glad you got a few decent albeit hard days with her last week. Continued prayers for you and dad during time of loss...
Scott, I am so sorry for all that you've gone though over the past year, I'm so sorry you lost your mom and that it has been so horrible for you and your...
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