Hello again. My name is Jennifer and I live in Washington State. Just wondering if there are any research studies somewhat close to my area that my daughter...
Hi Jennifer: Dr. Peter Byers at the University of Washington has been very active in conducting Marfan studies for the past 20+ years. He came to Alaska to ...
Hi everyone, I want to take this time to apologize to my daughter, Connie, for not being able to cover chat until she got back into town. She had called me...
Thank you very much for the info. My daughters genetesist is on staff at the UW as well. His name is Dr. Raff. Heard of him? Seems really nice as are the...
Sunday night chat will be open for a few more minutes tonight. The Sunday night chat was slow tonight probably due to the holiday weekend. I know I missed the...
Thank you John for bringing that business of the new files being added to my attention. I had been out of town for a few days. I did not notice. I have deleted...
i'm so glad i did not open them,thanks for the warning want2bteacher <want2bteacher@...> wrote:Thank you John for bringing that business of the new files...
by now many of you already know that there is a virus going around in a letter which is using the address of the NMF, and hitting NMF members. Do not open...
thanks for the warning!! Sally Tomson <stomson98003@...> wrote:by now many of you already know that there is a virus going around in a letter which is...
Hi. I am looking for someone (others) to discuss medical & life issues with. My husband was diagnosed with MFS after his aortic dissection last year (6 weeks...
Has anyone had aortic dissection repair and then been diagnosed with a residual dissection or intimal flap, months after surgery? It seems to me that ANY...
Sunday night chat time is happening once again tonight. The hours of the chat are from 8-11pm eastern time. I hope you can all join me there. If I am a few...
Thank you for joining our support group. We are a very open group and can usually supply you the answers and support you need to live with marfan. My ten year...
The Sunday night chat has been somewhat slow this summer. I am sure it will pick up again soon. When the Sunday night chat starts to pick up again, we will be...
Enter your vote today! A new poll has been created for the marfans_support_and_chat group: How does Wednesday nights at 7pm eastern time work for you for...
marfans_support_and_c...
Jul 14, 2003 1:37 am
662
Well, it was a slow night tonight in chat. I still had fun though with the members that showed up. I hope we were slow due to summer and the convention being...
Ok all, it is time for Sunday night chat. The chat time is from 8- 11pm. I hope you all had a great week and an even better weekend. This summer the chat has...
Hi everyone, This is a reminder that the first voice chat will be this Wednesday night from 7-8:30pm EST, so those that want to talk and not type come join us....
hello everyone I know you haven't heard from me in a while. I am finally over one of my hurdles. I had my hysterectomy on July 10th at Johns Hopkins Hospital...
Sunday night chat is set to begin in only another hour. I hope you can join us this week. We meet in the chat room from 8-11pm eastern time. As usual, I hope...
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