Yep, Jan 7, 2008 was the day I had my chest cut open, and had my root replaced. Must have worked, as I am still alive.. One year ago today, I was suffering...
Happy Anniversary!!!!  First year is the hardest. This coming St Patricks day will be my 14th  anniversary!! Yikes where DOES the time go?? lol  ...
We use Yahoo IM conference feature. Yahoo IM is a free download if you don't have it yet. Then send a friend request to iowamarf (me). I usually open, and...
Hi. My son just had an echo that showed that his aortic aneurysm had grown a bit since the last time. It is now at 3.8cm. He is 188cm tall and 70.4 kg -...
Julie, I can't answer the z-score questions really as I've never studied them enough to understand and what I do know of them, they don't seem to always make...
Marsha I think you explained that really well. Julie, I do not have great answers to your questions because every case is different. With our son when he was 4...
Thanks for the replys. Chat will be tough tonight, altho I would love to hear other opinions!! We have two computers and three teenagers in the house. If I...
Julie we could chat in the afternoon sometime. My afternoons are free except for Wed.'s , I am home sick today :) I am sure there are others that could make...
Hi. My name is Sheri. I'm a 46 year old mother of two. My son (age 10) and I were both recently diagnosed with aortic anuerysms. We are having genetic testing...
Sheri - Before getting genetic testing, you might want to check your life insurance and health insurance and get them in order, because once you are formally...
Hi Julie- Yes - if it's Loeys-Dietz they will need to do surgery much earlier (I am actually right at the cut-off line now) as the arteries tend to burst more...
Sheri, Â Just so you know, Dr. Dietz is WONDERFUL! ... From: ssstukel <ssstukel@...> Subject: [marfans_support_and_chat] Re: Intro and questions To:...
Sheri,  Just so you know, Dr. Dietz is WONDERFUL! My son see's him and believe me it's worth the trip from NC. Good luck  Vickie ... From: ssstukel...
Vicki - Have you seen him? Tell me! Tell me! We have gotten a bit frustrated at the lack of knowledge about all this. I don't expect every pediatric cardio to...
Sheri - My story is this: My sister is our pediatrician, so when my son's chest looked odd and he was so tall, she was suspicious of things very early - and...
Julie, I'll be praying for you guys. Our journey is only a few weeks old, but some of the shock has worn off and I, too am very thankful to know about our...
Sheri, He is one of the two that discovered LD, hence it being named Loeys-Dietz. If anyone knows LD it is him and therefore why we go there. My son had...
Thanks so much, Vickie. That is very encouraging. I am trying to develop a plan (if that, then this type-thing) for when we find out more and to make this...
Hi there. My name is Jenny and I have been followed by cardiology since I was about 12 years old (I am now 35) at which time my aorta was 3.4 cm. At the age...
Thanks Jenny. I did get a call from my son's cardiologist and he said that if it were his child, he would let him finish the volleyball season - but not start...
In that case I'll join in next week. I have some concerns about my Marf niece who will be undergoing surgery for scoliosis in May. I feel so ignorant - but...
Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday February 4, 2009 ...
marfans_support_and_c...
Feb 4, 2009 12:55 pm
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Fish oil is good for everyone and everyone should take it if you aren't eating lots of salmon or other things that have what fish oil has in it, omega 3. ...
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