Hello all! I just wanted to say, that after a two year long battle with social security, I have won my case based in part by the fact that I have Marfan...
HI KELI, MY NAME IS VICKIE, MY SON HAS MARFAN'S ALSO AND WAS DENIED IN 2005 BECAUSE HIS IQ WAS TOO HIGH. I REAPPLIED AGAIN IN DEC OF 2007 AND JUST FOUND OUT...
Hi Keli, May I ask which symptoms you have? Have you had multiple aortic or other surgeries? Sorry for asking, but I'm pretty new to this group and I don't...
Congratulations Keli and I'll say a prayer for you Vickie. I still can't fathom why they would deny your son based on his IQ. How smart a person is has ...
Claire, I am new to the group also. Where did you have your aortic surgeries? I'm sorry you have had so many, and have more to go. I have a descending...
HOORAY!!!!!!I am so happy for you, and for everybody with Marfans! Since it is so hard to get insurance, this will help with so very much. Yay!!! and...
Hello All I too have trouble swallowing. When I complained about it to my general practitioner, he ordered tests on me which basically had me swallow contrast...
Hi Claire! Well I must admit my problems are not near as bad as yours are, my aortic dialiation and regugitation are still minimal. I've never had to have...
Can I have this scar tissue even though I've never had heart surgery? Keli Ps.. I'm sorry about all the questions I'm kinda coming in on this discussion thread...
Keli, Let me describe my experience. Little background on me. I am 39 years old with Marfans. I have not had any heart surgery yet (knock on wood). I went...
Jason; Thank you that answers my question on whether you've had to had heart surgery in order to have this disorder. Now my next question is, which doctor...
Keli, I met with a Gastroenterologis who did the EGDs. I was lucky to have good insurance at the time. I have even better insurance now and I'm married to an...
Congratulations Keli on being approved! In a message dated 3/13/2008 11:24:54 A.M. Eastern Daylight Time, tortmom@... writes: Hello all! I just wanted to...
There have been advancements in the approval process due to a few, major changes. The biggest one is that we now have a correct and accurate description of...
There are several things that can affect your swallowing food and having that stuck feeling. As mentioned, it could very well be scar tissue. (if you have had...
Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan chat time Friday March 14, 2008 8:00 pm...
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Hello, It has been a while since this post, and I wanted to check in with you and see how things are going? Did you find the doc.s you need? If I can be any...
... She has been doing it on Marfan and I, her husband, and some of our five children have Marfan. ... physical, physiological, and societal effect of Marfan,...
... about 6 years ago ... honest i dont ... you, i can tell ... ones life who has Marfans Syndrome. ... 2007's hottest ... NCID=aoltop00030000000001)...
... interested in me, or at least they don't seem to be. ... taller since he was 15. He had recurrant ingrown toenails and developed a bone infection. He was...
