My son Johnny was first suspected to have Marfans at age 3. It was confirmed when he was 6. I had never heard of Marfans before that first time when he was 3....
Hi I wasn't diagnosed with marfans till my youngest was 5yrs old. I have 3 children 2 with marfans. It's hard to say what i would have done if I'd known way...
Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday December 2, 2007 8:00...
marfans_support_and_c...
Dec 3, 2007 12:25 am
5038
I just received a call from our oldest son Jason, who is 24. He has never been diagnosed with Marfans, only our 16 and 9 year olds. Jason went to the emergency...
I have been through alot with having Marfan and children. I was diagnosed with marfan when i was pregnant with My son....... 4 mos into pregnancy. Though My...
If you new you had marfans after the first one .Y did you have the second one ? Do you think it was fer to your daughter to but her throw all that marfans has...
I know that many folks on this list go through horrendous medical procedures and I commend their bravery. But to be honest if I knew that my child had a 50%...
Ok well because my second pregnancy was not planned there was no way I was going to kill anything...... especially a child I was just saying that marfan woman...
I was told when I had my first surgrey to put a rod in my spine at 9 years old that i would never have kids. I would not be able to get pregant and if I did I...
No offense taken, I was just expressing my opinion. It is not a black and white answer for everyone. I just know that I would not willingly deal with having a...
One question I wonder about is, percentages. When a parent is a Spontaneous Marf, will they have the same chance at having a Marf child as the parent with...
There could be some relationship. He is quite young for a glaucoma diagnosis in general so something must be amist with his ocular system. I did a google on...
I would assume that it would still be 50-50 as the spontaneous Marf parent would have the same capacity to pass on his/her gene as a non-spontaneous Marf....
OK, TRIED TO STAY OUT OF THIS ONE AS I'M NEW TO THE GROUP (NOT MARFAN ITSELF, MY SON HAS MARFAN OR NOW POSSIBLY LOEYS-DIETZ) BUT WHOEVER YOU ARE VINCENT, YOU...
I am sorry you have been through so much, but if you think just because a persons child has Marfans and the parent doesn't that the parent doesn't have to live...
... I am very sad for you, Not only do you have to deal with you future surgeries and marfans, but you have a long way to go to healing your bitterness and...
Thanks for the info. He went back in this afternoon, and cannot see out of his left eye. I am worried, he is on a lot of meds right now. He knew something was...
Are you having a bad day, or are you always so nasty to people? I feel bad you have Marfans, but your big problem is you're totally obnoxious. Tammy Vincent...
... lucky, because I have not lived my life as HELL. I, like many non-marfs, take the good with the bad, and I have enjoyed the good times in my life, and if...
Well i have to live with mine plus my oldest daughter and if i would have noing what i know now she would of not been here . and if a person knows and still...
... 7yrs and perfectly healthy and happy, my health has been even more complicated since his birth, so yes i am paying for it in a sense, but I do not regret a...
No a bad year . Im sorry but peaple have to start thinking of others before them selfs.and do the right thing. If you dont think i know what marfans can do you...
Ok, I have been mean. Even though I don't like your attitude, I should not be ugly. What I should say is , why don't you go do something nice for somebody for...
If you dont have to walk the bath your self you have no right to say Iv spent a life time thinking and doing for other . I put my life on the line for my...
You know I am beginning to think you just actually enjoy being a bitter person. Why do you think your life is any more difficult than anyone elses? Do you...
Hi Kelley All i em saying is we all have joyes so y give a child a life with marfans. when there are so many that would love to have a family and a home. Idont...
OK so now i think i have read too much crap how can anyone say if they had known about marfans they would never have had there kids my mother said that about...
Hey Vicki- You say you are proud to have Marfans. I know it is a hard to thing to live with, but my 9 year old son told me just the other day how happy is...
This isn't an easy decision to make in any regards and I am sure that there are the majority of us that would like not to have Marfan's, but we do and so be...
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