Hi everyone, I just wanted to share that Wyatt had his 3 month eye exam yesterday. His vision has continued to improve, and with his new prescriptions he will...
Please don't respond to the list about the spammers! I don't care if you email them directly although I don't know why you would want to give them your direct...
I'm looking for some help getting an accurate diagnosis for my husband. By way of background, my husband's father died of sudden heart failure at age 52 and...
National Marfan Foundation ADVOCACY ACTION ALERTNMF MUST ACT TO PRESERVE GAINS IN HEALTH CARE FUNDINGFISCAL YEAR 2008 LABOR -HHS -EDUCATION APPROPRIATIONS...
Hello, We needed to see cardio, opthalmologyst and genetacyst for a diagnosis for our son, and still see them for treatment. We see Dr. Peter Byers from...
With Maya's permission I am forwarding this, she has been joining us for chats when she can. From: "Maya Zimmerman" <maya.m.zimmerman@...>--Hi everyone!...
This was a great report and I'm glad you took the time to bring us up to speed. My wife has been doing an exhaustive research study on Marfan as her final...
Hi, I know I haven't posted anything on here for a quite a long time, but I thought I would now. I've been battling some issues for approx 2 years. The right...
I am shocked to read this... It sounds like I could be typing it myself. My doctors also think I may have MS, but I am doing everything to avoid finding out...
If there is a connection between the two I definately want to know. 2 of my kids have been diagnosed with Marfan syndrome. The others are possible but not...
Not that I know of, but I had the same thoughts. If you find a correlation, let me know. Barb Amanda Mark <MandieMark@...> wrote: I am shocked to read...
Hello to you all I have also not written in awhile. My Son has Marfan's he is 6 years old. My daughter has been having some dizzy spells and walking into walls...
I'll let you know how the neuro appt goes, that one is going to be with a local one. I have one with a specailist on Dec 20th. I made that one August. Comes in...
Thank you for sending out this article. Hopefully this will help many people with this syndrome. Wish they had this when my boys were little, and maybe my...
I set up a Facebook profile with my pictures, videos and events and I want to add you as a friend so you can see it. First, you need to join Facebook! Once you...
Hi all, Havent written in such a long long time but still read everything of course. daniel is 19 yrs old now, has Marfans and last yr had dizzy spells...
well, I don't know what to say, talk about an opportune time to read this. My son Ryan has had severe headaches since he was 7, he's 20 now. But today we were...
Hi everyone long time no chat.......I was just wondering if anyone has heard of or had an aneurysm in thier arm/neck? I found out Fri that I have one, my Dr....
Kelley, My 19 yr old son has an aneurysm in his aortic arch/neck at present. Keeping a very close eye on it with cardio - 8 week visits at present and he...
I have dissections into my carotids, a subclavan and illiac arteries. So far no actual aneurysm but I also first ruptured without an aneurysm. I do know...
Here's the link to a neat story about a Canadian child who loves soccer and got to meet a player. I know we have some Canadian kids that wish they could play...
My daughter Kati has suffered from migraines since the age of 6. At first our hospital in Seguin, TX said she had a brain anneurysm and rushed her to San...
... suffering:( I have been having sudden, very intense pains that start in my head and go down one side often traveling to the shoulder, and they last about...
Date: Tue, 13 Nov 2007 18:20:27 -0500From: nmfnetwork@... National Marfan Foundation We are pleased to inform you that Marfan syndrome is expected to...
Marsha, I missed it how was it? Missing you all, Larie ... Date: Tue, 13 Nov 2007 18:20:27 -0500 From: nmfnetwork@... National Marfan Foundation We are...
Marsha, I missed it how was it? Missing you all, Larie ... Date: Tue, 13 Nov 2007 18:20:27 -0500 From: nmfnetwork@... National Marfan Foundation We are...
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