I know I need my doctors go ahead and such with my marfans but I was wondering if anyone had any experience applying for a job that they may be concerned over...
Hi, this is an interesting question. From my experience working with HR department in a company where pre- employment physicals were required for ALL positions...
17 years ago I was suspected of having it told I might make it to 30 and was given beta blockers till up to a few years ago. I have had echos every other year...
I found this response very interesting. I workout almost daily. I lift weights occasionally and I swim around a half mile everyday and if I have time, maybe a...
Before I was pulled out of sports I did Judo, Wrestling and Football as my primary sports. I competed nationally for Judo and was varsity starter my freshman...
Wow. I have got to definately respond to this. I am pregnant with kiddo #9. My 9 year old son and my 16 year old daughter both have Marfan syndrome. My son...
Tammy, I think it's great your kids have been able to strengthen their joints and muscles. I think the best known cardiologists in the marfan assocation have...
Hi Everyone, Just incase anyone missed me, Just spent 2 years in Clatterbridge Hospital (Wirral, England), recovering from a total Aortic replacement and some...
... I had my Aorta Replaced, from where it starts in my lower abdomen all the way to my heart. also had a large part my carotid artery and the femoral arteries...
hi tammy my name is rosalind and it sounds wonderful that your son is doing so well at excercising. my son who is 7 he has marfans and he likes to excercise....
I'm guessing that you are talking about the Marfan Study with Lorsartan / Atenonol. If that is an accurate presumption, my 9 year old daughter is in it. She...
Welcome back John! Know I saw your son post a couple times (elsewhere) but didn't know it had gotten so serious. Glad you're back and look forward to talking...
Masha wrote :- Welcome back John! Know I saw your son post a couple times (elsewhere) but didn't know it had gotten so serious. Glad you're back Thanks...
Thanks Jon _________________________________________________________________ Got a favourite clothes shop, bar or restaurant? Share your local knowledge ...
"Did you have any aortic surgery prior to this one? How long were you on the choppin' block?" Yep, I had an aortic repair 11 years ago(this is when I found out...
Lee asked - Was this total replacement done as a result of going to the emergency room or did they observe it and do an elected surgery? The surgeon has been...
I got this from NMF and thought I'd share! " I want to let you and others in the support group know about an article that just came out in Hopkins Medicine,...
Hello all . Its been a while since I have written. My husband is back from Iraq now safe and sound. My son Noah is the one with Marfan's. We have had alot of...
LDS is short for Latter Day Saints. Latter Day Saints is short for Church of Jesus Christ of Latter Day Saints. But the shortest name (and probably the most...
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