Pleeeeeaaaaaasssssse, if anyone knows a good orthodontic in Los Angeles area, let me know, I'm in desperate need of one, for the braces and jaw surgery for my...
Pleeeeeaaaaaasssssse, if anyone knows a good orthodontic in Los Angeles area, let me know, I'm in desperate need of one, for the braces and jaw surgery for my...
Hi: I'm Esperanza and my daughter has marfan syndrome, she needs braces and jaw surgery and I'm in desperate need of a good orthodontic who specialize in...
Hello, Through the years, I have been told that steroid injections (cortizone and epidural injections) are contraindicated for us Marf's. Has anyone had...
I was wondering has anyone had cortizone shots for the costochrondritis. I have such a hard time managing the pain. It comes constantly. My stomach cant handle...
Hi Everyone, This is Jon Rodis from Boston, MA, USA. My wife Kathleen and I assist people all over the U.S. with their disability cases as a team. Kathleen...
It it I, Velda, owner of MC Before you lynch me please read what I have to say. If it were not for S & C, Marfan Connection would not be here! So in essence...
Hi Vicki, I am a father of 5 in the U.S. and 4 of those 5 are girls (poor me). Since family is a very important part of our life, I am very interested in...
... girls are easier then boys i think but to the bit of pregnancy well i was ok all 4 i had a natural birth no pain meds i was put on atenolol with my 2nd...
Lee & all, In short they are abbreviations for 2 yahoo groups, this one Marfan Support and Chat (S & C) and the new Marfan Connections (MC). To explain a...
Hi Lee, If I may be so bold as to add to what Vicki said (she knows her stuff), I would be interested to know if your children have Marfans. If they don't...
Hello, My name is Laura. Myself and 2 of my 3 boys have marfans and I am looking forward to chatting with you. Can you please let me know how I can get into...
Welcome Laura, Vicki and anybody else who hasn't introduced yourselves! For chat we are now using Yahoo IM so you need to have it (free download) and then send...
I am dreadheadknottykittie on Yahoo IM...knotty is for the knots in dreads not like naughty.........By the way, I no longer have dreads not that that matters....
I took my 18 year old daughter yesterday to a new Rheumatologist for the treatment of her Fibromyalgia. About 3 minutes into the exam, the doctor turns to me...
Hi i'm new to the group. i've known i've had marfans since childhood. i'm 30 now. i have a severe curvature of my spine and am constantly tired at the moment,...
Since my descending aortic tear (as well as a tear a veing that runs to the right arm) on July 17, I've been on blood pressure meds, and have been trying to...
If I may be direct...just for my own clarity....how old are you? What was your blood pressure before you "got it down" ? Have you had aortic tears before and...
Hi -- I'm 38 with no history or aortic tears. I've only had annual Echocardiograms to watch the ascending aorta. Changes of the years have been minimal. My...
I assume that you are in touch with the National Marfan Foundation, NMF. If not, contact them...they have connections to the best in the world. And that's the...
I want to know how I can get on to the chat. Do I need messenger or do I click on the link of the chat time posted here. Please help. I'm so glad I found...
Hi everyone, I am missing the chats? Our computer died, so I can only e mail at work.:( My sons 6 month echo is coming up in a couple weeks and I always get a...
Hi There.. I can relate to your situation as well... I had a dissection of my entire thoracic area last fall and woke up in Toronto General with a new valve...
Hi Everyone, I thought I should share how I have learned to approach people to tell them about Marfans. I try to assess the situation quickly as I can in...
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