Hello all - I posted a while back that it looked like my husband would be having surgery but we weren't sure when. It's going to be this Wednesday (June 6)....
... and it isnt too bad and recovery went well for me....The last time was almost a year ago....Congratulations on your adoption....Things sound like they are...
I too wish you and your husband the best of luck over at OHSU. If I can do anything for you locally, please send me Email. Rose ... and it isnt too bad and...
Wendy.. Good luck to you and Aaron. I had the surgery.. valve replaced, dissection repair 8 months ago and everything is coming a long fine. Much more...
I know how frightened you must be. This has got to be stressful. You're probably so excited to get your new little girl and worried about your husband at the...
You may have posted already but if so, I missed it. How is your husband? OK Lee Leslie Dube <l_dube2003@...> wrote: Wendy.. Good luck to you and Aaron....
Hi all - Aaron's surgery went very well. They replaced the weak section of aorta and replaced the valve with mechanical (the doctor tried to repair but didn't...
I know he looks pretty beat up, washed out, and really bad but I think you will see an amazing recovery over the next few days. Within two weeks I bet he will...
Hi Wendy, Wow! Aaron's up in a chair!! That's awesome. I guess Mike's was a little different because it was an emergency surgery and he had dissected, but they...
Hi all, just reading the posts brings back many memories. What scared me the most, was the tube/wires coming out of my husbands neck. This was feed through...
NEW MARFAN DISCUSSION GROUP (use to be the "Ladies chat" but we decided to form an official group so everyone can be included!) This group has been developed...
Well, where do I begin? I am new to all of this and although somewhat of a diagnosis, but not really, was made in March, it is only know that denial has taken...
Hi what you have written is what this group is all about. We lean on each others shoulders and we listen. I know what you are going through. I was diagnosed a...
Hi Krista, My son is 7, he was diagnosed at 4. His was discoverd by an eye doctor that got excited because he had never seen this before. He was showing his...
You are in the right place for the help and fellowship that people who are affected by Marfans, either as having it, being a parent, spouse or caregiver, to...
Thanks Debbie for your email.Apologise for the lateness of my reply,new to computers so still finding my feet! I am 34,married and have two wonderful kids,aged...
Hi, I have tried several times to unscribe to your group, could you please take me off your mailing list, it would be greatly appreciated. Sherry Heldt From:...
Hi, I was just wondering if anyone els in this group is going to conference? It would be great to meet some of the people Ive chatted with in person! ...
Too far and too expensive for us but it should be a great time. OK Lee larie beck <ty_ree_b@...> wrote: Hi, I was just wondering if anyone els in this...
Hi everyone, This is a invite that was sent out to mambers of the National Marfan Foundation in Southeastern Washington. If anyone on this list lives out of...
Hope many of you are able to go to the conference! It is always an amazing time. There have been requests to have some special chats after the conference...
Hi, I'm new to the marfans chat room. I've never entered any chat room before so I'm don't really know how this works, but I thought I'd give it a try. I...
Hi Polly, (I'm guessing that's your name) Hang in there, all of the people on the forum either have Marfan or know someone that does have it. So you will find...
Hello and welcome, Newbie (Polly?). I also had never been a part of a chat room, but it definitely made me feel like I was a part of a safe and supportive...
I'm afraid I don't know just how this chat room thing works, but I'm sure I'll learn. I am 63 and was diagnosed with marfan when I was 3. I have had numerous...
Just thought I'd post a quick update, thanks, and welcome to the newcomers! My husband (Aaron) had his aortic root replacement and mechanical valve put in June...
Hi Wendy and Aaron, I'm new to the group, but just wanted to say congratulations on the successful surgery. Hope all continues to go well. I had the same ...
Will do, Polly. I don't think his doctors now will let him out of their sight for long! Still, we've learned even more the importance of being proactive with...
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