I haven't been in chat for a while and I am sorry! I have my computer all packed down for the move. no phone or ISP. Right now I am at the library checking...
Hope the move goes smoothly. Hugs, Larie Adela <satb1972@...> wrote: I haven't been in chat for a while and I am sorry! I have my computer all packed...
Hello all we are doing good. the move is a very slow process for us. Tom is going to Seattle today to get his echo at the Univercity. I will let you all know...
I know a lot of you think I fell off the planet! But, no, I am still here. Alive and well and slowly adjusting to a higher altitude. Unfortunatly I have no...
We sure miss you and look forward to your speedy return...Hope you get that
Hughes system soon... Linda and Karen ... From: Velda Gauze Date: 05/12/07 13:52:16...
Hello all - Well, after 31 years of Marfan's it seems to be my husband's turn to have problems. Last fall he had eye surgery and today he was informed that his...
I am not sure if OHSU is the only place for heart surgery in general, but if there is a particular problem like Marfans, that is the only place to go for...
I'm trying to get to the chat room on marfan syndrome, well i guess you can tell i don't know what i'm doing i'm new at this computer stuff.Can anyone get me...
I don't know anything about the docs in Portland, but I want to wish you the best of luck and tell you that you and your husband (and soon to be new daughter)...
Wendy, Contact the National Marfan Foundation. They can provide you with hospitals and doctors in that area that specialize in Marfans. Good Luck. Kris ... ...
Could anyone tell me the best hospital to visit about marfan snydrome, and how often you should be check.Because i just had a visit 6 months ago and made...
Good Morning Annette, No you are not alone. There are a bunch of us right here for you to talk to.... I'm gonna give you the web site for the National Marfan...
Annette, Please know that you are not alone!! I had always been able to work tons of hours, and be as active as a non-marfans person. The only thing that...
Hello Annette. You have found the group. Now if you load Yahoo Messenger, you can join us in chat. It is extremely easy. You just have to send an IM to one...
Hi everyone, I've just joined the Marfans chat group and my name is Marilyn. My husband, Colin, is the one with Marfans, but I am the one who uses the...
Hello, welcome to the group! I am also the spouse and mother of someones with Marfan Syndrome and yes it is a roller coaster ride! Feel free to contact me...
Hello all - My husband (Aaron) will be having aortic root surgery and valve replacement (possibly repair but most likely mechanical replacement) sometime in...
Hi Wendy, You are right, we are all going to have an opinion and very few of us are doctors (I'm sure not). I have, however, had two aortic surgeries (plus on...
Kevin Porter <rugbykevin3@...> wrote: Date: Tue, 22 May 2007 20:07:17 -0700 (PDT) From: Kevin Porter <rugbykevin3@...> To: firstbase_kev@... The FDA is about...
checking in. I feel like I fell off the edge of the world! we don't have an ISP and we won't for a while. I am back to checking mail at the liberary. Toms echo...
Marfan syndrome will be featured this weekend on the television program, To Your Health, which is syndicated nationwide on NBC affiliates. Television pieces...
Good to hear from you Adela, Keep us posted! Hugs, Larie Adela <satb1972@...> wrote: checking in. I feel like I fell off the edge of the world! we don't...
Hi everyone. Just wanted to let you know I'm still here and just trying to get familier with the chat site, this is the first group that I've joined. I am...
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... never ... tore ... my Dr ... over- NOT ... subluxation of ... to get ... Descending ... that they ... MRI they ... the ... through ... Dr ... upset to ... ...
... Miraculously ... my ... the ... yeah ... is ... JHopkins ... bother ... Hysterectomy ... My ... I ... information ... Colin, ... at ... Ontario ... nothing...
I had my Mitral Valve repaired (twice-due to unforseen complications), in Sept. 2000... and the only place I would have gone was the Cleveland Clinic. I had...
Anyone familiar with the side effects from the anti-estrogen drug Femara? My Mom,who is 77,started taking it recently after having breast cancer surgery late...
I know nothing about this drug but you caught my attention when you said your mother was 77 with marfans. I'm intererested in longevity with marfans, as I'm...
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