ok sunday chat is closed and we had a good time. Everyone tells connie hi and hope she can join us again next sunday. also want to remind everyone about...
Hi my name is Patty, and my 4 year old son was dx with marfans on 4/8/03 they are telling me his aorta is as large as an adults. I would like information on a...
Hello, I apologize in advance if I'm breaking the etiquette of the list in any way. I'm unable to check the message archives so I have no way to browse through...
Please by all means post your queries. You are not out of line in anyway shape or form. We welcome all posts whenever they are made. We can definately advise...
the aorta is not the heart. Get someone to explain this to you more clearly. patricia mcgoey <padukie157@...> wrote: Hi my name is Patty, and my 4 year...
Hi my name is Andi and my 4 year old daughter has marfans also. She has been dx since birth. Her aorta is not as enlarged as your sons but is enlarged. They...
Due to the marfan's his heart is quite possibly enlarged as you explained. My heart was extremely enlarged when they did my first surgery to repair my mitral...
-the aorta is a large vein or artery which is designed tocope with the tremendous pressure of blood as it is being sent into the heart,it is not the heart...
The list is continuing to say the heart is NOT enlarged. I HAVE had three surgeries for marfan's and the heart CAN and most of the time IS enlarged along with...
Hi DonThank you... we have been told my son has an enlarged as well as his aorta being as large as an adults he is 4 years old. I do know the aorta is not the...
Well hello to you all! After a week of working on my computer, I am finally connected to the internet again as of right this moment. And praise God, just in...
Good night all, I came back as soon as I could but you were all gone. Sorry I missed so much of the chat tonight. I am hoping that Jessica has only some strep...
hi connie hope yor daughter is feeling better well i have make some new friends due to your chat thank you soo much we stayed till about 10 eastern time but...
hello everyone, My name is Leeann Fisher, an entreprenuer in the fashion world, and I'm thinking about having a portrait photograph done of Marfan women. A...
Hi Sheila! Sorry for all my disconnections. Either I don't succeed entering now, or you are already gone.... Sorry again, and hope to be more present next week...
hi, i don't have Marfan's but i'm very intersted ,so i hope no-one minds me looking in now and then sunbeamkr <sunbeamkr@...> wrote:Hi Sheila! Sorry...
I am curious about why you are interested? Are you willing to say? Sally lizabeth harte <lizabethharte@...> wrote: hi, i don't have Marfan's but i'm...
I think it is a great idea. The long slim look can be very interesting. Sally Leeann <leeann21206@...> wrote: hello everyone, My name is Leeann Fisher,...
it's a very historical disease, but not well known,if it's genetic ,does that mean that all Marfan's have a traceable lineage?i'm interested through my nose,i...
Hi Lizabeth: Children with one Marfan parent have a one in two chance of inheriting the disease, so most people can trace their Marfans back to earlier...
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