Search the web
Sign In
New User? Sign Up
marfans_support_and_chat · Marfans Syndrome support and chat
  • Members Only
  • Post
  • Files
  • Photos
  • Links
  • Database
  • Polls
  • Calendar
  • Promote
  • Groups Labs (Beta)
? Already a member? Sign in to Yahoo!

Yahoo! Groups Tips

Did you know...
Want your group to be featured on the Yahoo! Groups website? Add a group photo to Flickr.

Best of Y! Groups

   Check them out and nominate your group.
Having problems with message search? Fill out this form to ensure your group is one of the first to be migrated to the new message search system.

Messages

   Messages Help
Message #
Search:
Advanced
Messages 402 - 432 of 6694   Newest  |  < Newer  |  Older >  |  Oldest
Messages: Show Message Summaries   (Group by Topic) Sort by Date v  
#432 From: "Alison" <lyte_funky_one_ali@...>
Date: Thu Mar 27, 2003 6:03 pm
Subject: Sorry for not being at chat... 		lyte_funky_o...
Offline Offline
Send Email Send Email
  
HI

It's Ally here. Sorry for not being in chat for quite a while now.
I've been having driving lessons early on a monday morning, so being
up at 1am wouldnt have done me much good.

I'm pleased to say that I have finally taken my driving test and
passed, so that means soon I'll be able to come into chat more often.

Hope u r all well
Ally

Reply | Forward | Messages in this Topic (2)
#431 From: Connie Snyder <want2bteacher@...>
Date: Thu Mar 27, 2003 2:53 am
Subject: Re: Hello i am a new member 		want2bteacher
Offline Offline
Send Email Send Email
 

I hope there is something you can do for better insurance soon. There is no way someone who needs regular health care like you can be without health insurance that pays. Have you actually been diagnosed yet? Have you had any checkups with any of the specialists? Please do let us know. It is so important to be seen regularly with Marfans. Glad you joined us and found our little family! God bless!

Connie (want2bteacher)

 Fay <fvanstee57@...> wrote:

I am 45 F michigan. Found out I had marfans when I 33 yrs old. I was
productive , work at a fast paced package plant. I wondered why I
couldn't keep up anymore, went through alot of tormentuous
physcicals and orthopedics and P.T , Pain management as well that
the injections worsened the symptoms not relieved. After all I went
through, My doctors of our HMO were puzzled and decided it was best
I see a geneticist since I wasn't responding to any of the
treatments. Here I sit, alot of painful symptoms and poor
healthcare. I can't afford it.   Fay



To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Connie M. Snyder
want2bteacher@...


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (2)
#430 From: rjer16@...
Date: Wed Mar 26, 2003 6:16 pm
Subject: Re:first time 		birdeeyard
Offline Offline
Send Email Send Email
  
I wasn't able to get into the chat. Left a message. Thought maybe I was all
alone there. Will try and tune in on another scheduled day.
Thanks for those who wrote about my entry. I hope to be able to connect
better next time.
Ruth

Reply | Forward | Messages in this Topic (7)
#429 From: "John" <john.hardman6@...>
Date: Wed Mar 26, 2003 7:46 am
Subject: Teenage Marfan Contact - Michael 		bigjoker999
Offline Offline
Send Email Send Email
  
Hi Everyone,

Finally made the Tuesday chat, had a great time will try and get to
next weeks.  Just a quickie I was asked to pass an e-mail contact on
to my son.  Sorry I carnt remember the name of who asked me but I
remember his son's name was Michael.  Just to say the e-mail ID
you
gave me bounced maybe you could re-mail me his ID off list and my
son will try again.

Be well everyone and talk to you all soon.


John (Wallasey/England)

Reply | Forward | Messages in this Topic (1)
#428 From: brenda stadtler <tweet2002000@...>
Date: Wed Mar 26, 2003 2:38 am
Subject: Re: Re: first time 		tweet2002000
Offline Offline
Send Email Send Email
  
hi there....well your at a good place we all here know
someone or ourselves have it....I'm 35 and I have it I
had surgery and dealing with meds....I and others are
here for you...please don't hesitate to ask...
--- Fay VanStee <fvanstee57@...> wrote:
>
> IT IS ALL NEW TO ME I WILL HAVE TO TRY AGAIN. I WANT
> TO MEET AND TALK TO OTHERS WITH THE MARFANS SYNDROME
> I FEEL LIKE AN ALIEN. FEEL DIFFERENT THEN  OTHERS
> AROUND ME I WISH I HAD A CLICKABLE LINK IN MY FAVES.
>  FAY
>  itsme4259 <itsme4259@...> wrote:--- In
> marfans_support_and_chat@yahoogroups.com,
> "birdeeyard"
> <rjer16@a...> wrote:
> > First time at this chat. Would like to "listen in"
> and see how to
> go
> > about being a good member. My son who is 30 had
> MFS.
> Hi there, this is Sheila and I did not see you in
> chat, were u able
> to get in there?  I had problems and had to go
> offline and then come
> back so could have been then.  I hope u will join
> and come to either
> of our chat sessions, Sunday is 8-11pm EST and
> Tuesday is 2-4pm EST
> so come and you will see how talking to others that
> have the same
> problems can help u to see u r not alone.  Have a
> good week and see u
> I hope on sunday or tuesday.
>
>
> Yahoo! Groups SponsorADVERTISEMENT
>
> To unsubscribe from this group, send an email to:
> marfans_support_and_chat-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Platinum - Watch CBS' NCAA March Madness,
> live on your desktop!


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (7)
#427 From: Fay VanStee <fvanstee57@...>
Date: Wed Mar 26, 2003 1:56 am
Subject: Re: Re: first time 		fvanstee57
Offline Offline
Send Email Send Email
 

IT IS ALL NEW TO ME I WILL HAVE TO TRY AGAIN. I WANT TO MEET AND TALK TO OTHERS WITH THE MARFANS SYNDROME I FEEL LIKE AN ALIEN. FEEL DIFFERENT THEN  OTHERS AROUND ME I WISH I HAD A CLICKABLE LINK IN MY FAVES.  FAY

 itsme4259 <itsme4259@...> wrote:

--- In marfans_support_and_chat@yahoogroups.com, "birdeeyard"
<rjer16@a...> wrote:
> First time at this chat. Would like to "listen in" and see how to
go
> about being a good member. My son who is 30 had MFS.
Hi there, this is Sheila and I did not see you in chat, were u able
to get in there?  I had problems and had to go offline and then come
back so could have been then.  I hope u will join and come to either
of our chat sessions, Sunday is 8-11pm EST and Tuesday is 2-4pm EST
so come and you will see how talking to others that have the same
problems can help u to see u r not alone.  Have a good week and see u
I hope on sunday or tuesday.



To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (7)
#426 From: "Fay" <fvanstee57@...>
Date: Wed Mar 26, 2003 1:44 am
Subject: Hello i am a new member 		fvanstee57
Offline Offline
Send Email Send Email
  
I am 45 F michigan. Found out I had marfans when I 33 yrs old. I was
productive , work at a fast paced package plant. I wondered why I
couldn't keep up anymore, went through alot of tormentuous
physcicals and orthopedics and P.T , Pain management as well that
the injections worsened the symptoms not relieved. After all I went
through, My doctors of our HMO were puzzled and decided it was best
I see a geneticist since I wasn't responding to any of the
treatments. Here I sit, alot of painful symptoms and poor
healthcare. I can't afford it.   Fay

Reply | Forward | Messages in this Topic (2)
#425 From: "itsme4259" <itsme4259@...>
Date: Tue Mar 25, 2003 10:55 pm
Subject: Re: first time 		itsme4259
Offline Offline
Send Email Send Email
  
--- In marfans_support_and_chat@yahoogroups.com, "birdeeyard"
<rjer16@a...> wrote:
> First time at this chat. Would like to "listen in" and see how to
go
> about being a good member. My son who is 30 had MFS.
Hi there, this is Sheila and I did not see you in chat, were u able
to get in there?  I had problems and had to go offline and then come
back so could have been then.  I hope u will join and come to either
of our chat sessions, Sunday is 8-11pm EST and Tuesday is 2-4pm EST
so come and you will see how talking to others that have the same
problems can help u to see u r not alone.  Have a good week and see u
I hope on sunday or tuesday.

Reply | Forward | Messages in this Topic (7)
#424 From: "itsme4259" <itsme4259@...>
Date: Tue Mar 25, 2003 10:51 pm
Subject: Re: first time 		itsme4259
Offline Offline
Send Email Send Email
  
--- In marfans_support_and_chat@yahoogroups.com, "birdeeyard"
<rjer16@a...> wrote:
> First time at this chat. Would like to "listen in" and see how to
go
> about being a good member. My son who is 30 had MFS.

Reply | Forward | Messages in this Topic (7)
#423 From: "itsme4259" <itsme4259@...>
Date: Tue Mar 25, 2003 10:48 pm
Subject: tuesday chat is over and we had a great one this week, take care 		itsme4259
Offline Offline
Send Email Send Email
 


Reply | Forward | Messages in this Topic (1)
#422 From: michelle posey <ntrain714@...>
Date: Tue Mar 25, 2003 9:30 pm
Subject: Re: first time 		ntrain714
Offline Offline
Send Email Send Email
 

first time for me also tuesdays chat at 2-4 fla time sunday starts at 8pm i believe but welcome and hope to hear from you

 

 birdeeyard <rjer16@...> wrote:

First time at this chat. Would like to "listen in" and see how to go
about being a good member. My son who is 30 had MFS.



To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (7)
#421 From: "birdeeyard" <rjer16@...>
Date: Tue Mar 25, 2003 7:34 pm
Subject: first time 		birdeeyard
Offline Offline
Send Email Send Email
  
First time at this chat. Would like to "listen in" and see how to go
about being a good member. My son who is 30 had MFS.

Reply | Forward | Messages in this Topic (7)
#420 From: "itsme4259" <itsme4259@...>
Date: Tue Mar 25, 2003 7:05 pm
Subject: hi it is time for tuesday chat, come join me for a great chat & day 		itsme4259
Offline Offline
Send Email Send Email
 


Reply | Forward | Messages in this Topic (1)
#419 From: samantha SAMANTHA <c00l121sam@...>
Date: Tue Mar 25, 2003 4:24 pm
Subject: Re: Marfs 		c00l121sam
Offline Offline
Send Email Send Email
  
no. Does every person with it have to have heart surgery?

__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (14)
#418 From: samantha SAMANTHA <c00l121sam@...>
Date: Tue Mar 25, 2003 4:23 pm
Subject: Re: Marfs 		c00l121sam
Offline Offline
Send Email Send Email
  
hello, im sam. How r u? so u have it also? Have u had
surgery yet?
>


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (14)
#417 From: brenda stadtler <tweet2002000@...>
Date: Tue Mar 25, 2003 12:42 am
Subject: Re: Marfs 		tweet2002000
Offline Offline
Send Email Send Email
  
hi I'm 35 years ol and I have marfans...I had an
aortic disection 2 yrs ago....
--- michelle posey <ntrain714@...> wrote:
>
> Hope you are doing o.k did they replace your
> valve.ntrain714 (michelle)
>  Drumrman67@... wrote:I have Martfan, and I am
> 35.  I just had aortic Graft Surgery.
> Yahoo! Groups SponsorADVERTISEMENT
>
> To unsubscribe from this group, send an email to:
> marfans_support_and_chat-unsubscribe@yahoogroups.com
>
>
>
> Your use of Yahoo! Groups is subject to the Yahoo!
> Terms of Service.
>
>
>
> ---------------------------------
> Do you Yahoo!?
> Yahoo! Platinum - Watch CBS' NCAA March Madness,
> live on your desktop!


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (14)
#416 From: Fay VanStee <fvanstee57@...>
Date: Tue Mar 25, 2003 12:33 am
Subject: Re: Marfs 		fvanstee57
Offline Offline
Send Email Send Email
 

Hello...... i am 45 years old. With good health maintainance he could live to be old. I have known i have Marfans Syndrome for 11 yrs now.  Chronic illness can cause depression. He can be an all A student. All I have heard about "marfs", is we are very highly intelligent people. I hope he turns this around. No reason to give up and quit trying at his school work.... He may need that someday to have an office job. Make good money in an office setting. He could even possibly become an entrepeneur... which would be fantastic. Marfans doesn't have to hold him back academically. He has to really soul search and make his mind up he can attain anything he wants.   feel free to write me   Fay

 soesygoin@... wrote:

My son has it. He is 16 yrs old. What does the future look like for my son? What are the treatments and how much research has been done on this Marfans? Could he have a long life? I am really concerned for him. He has really been depressed about it and has gone from a straight "A" student to barely passing. I need to find some help to handle his concern and help him deal with it.

To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (14)
#415 From: soesygoin@...
Date: Mon Mar 24, 2003 6:07 pm
Subject: Re: Marfs 		soesygoin
Offline Offline
Send Email Send Email
 
My son has it. He is 16 yrs old. What does the future look like for my son? What are the treatments and how much research has been done on this Marfans? Could he have a long life? I am really concerned for him. He has really been depressed about it and has gone from a straight "A" student to barely passing. I need to find some help to handle his concern and help him deal with it.

Reply | Forward | Messages in this Topic (14)
#414 From: michelle posey <ntrain714@...>
Date: Mon Mar 24, 2003 9:42 pm
Subject: Re: Marfs 		ntrain714
Offline Offline
Send Email Send Email
 

Hope you are doing o.k did they replace your valve.ntrain714 (michelle)

 Drumrman67@... wrote:

I have Martfan, and I am 35.  I just had aortic Graft Surgery.

To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (14)
#413 From: michelle posey <ntrain714@...>
Date: Mon Mar 24, 2003 9:38 pm
Subject: Re: Marfs 		ntrain714
Offline Offline
Send Email Send Email
 

yes I do have Marfans I am 37 found out when I was 36 my name is Michelle I have had 2 open heart operations and I have an artificial valve (st.Jude s valve) how about you?

 Jarod Alfred Mitchell <jarmitc2032a@...> wrote:

I'm 22 years old, and yes I do have Marfans.

jarmitc2032a

--- samantha SAMANTHA <c00l121sam@...> wrote:
> hey, how old r u? Do u have It also?
>
> __________________________________________________
> Do you Yahoo!?
> Yahoo! Platinum - Watch CBS' NCAA March Madness,
> live on your desktop!
> http://platinum.yahoo.com
>


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com


To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (14)
#412 From: michelle posey <ntrain714@...>
Date: Mon Mar 24, 2003 9:35 pm
Subject: Re: Marfs 		ntrain714
Offline Offline
Send Email Send Email
 

hi. yes I do have marfans I am 37 my name is Michelle, I found out when I was 36 after I had a heart attack, then I had an aortic dissection. I had 2 open heart operations and now have an artificial valve ( st.Jude s valve). what about you when did you find out?

 samantha SAMANTHA <c00l121sam@...> wrote:

hey, how old r u? Do u have It also?

__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com


To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (14)
#411 From: Drumrman67@...
Date: Mon Mar 24, 2003 4:31 pm
Subject: Re: Marfs 		drumrman567
Offline Offline
Send Email Send Email
 
I have Martfan, and I am 35.  I just had aortic Graft Surgery.

Reply | Forward | Messages in this Topic (14)
#410 From: michelle posey <ntrain714@...>
Date: Mon Mar 24, 2003 9:28 pm
Subject: Re: Marfs 		ntrain714
Offline Offline
Send Email Send Email
 

yes I do have marfans and I am 37 my name is michelle

 Jarod Alfred Mitchell <jarmitc2032a@...> wrote:

I'm 22 years old, and yes I do have Marfans.

jarmitc2032a

--- samantha SAMANTHA <c00l121sam@...> wrote:
> hey, how old r u? Do u have It also?
>
> __________________________________________________
> Do you Yahoo!?
> Yahoo! Platinum - Watch CBS' NCAA March Madness,
> live on your desktop!
> http://platinum.yahoo.com
>


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com


To unsubscribe from this group, send an email to:
marfans_support_and_chat-unsubscribe@yahoogroups.com



Your use of Yahoo! Groups is subject to the Yahoo! Terms of Service.


Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!

Reply | Forward | Messages in this Topic (14)
#409 From: Jarod Alfred Mitchell <jarmitc2032a@...>
Date: Mon Mar 24, 2003 5:12 pm
Subject: Re: Marfs 		jarmitc2032a
Offline Offline
Send Email Send Email
  
I'm 22 years old, and yes I do have Marfans.

jarmitc2032a

--- samantha SAMANTHA <c00l121sam@...> wrote:
> hey, how old r u? Do u have It also?
>
> __________________________________________________
> Do you Yahoo!?
> Yahoo! Platinum - Watch CBS' NCAA March Madness,
> live on your desktop!
> http://platinum.yahoo.com
>


__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (14)
#408 From: samantha SAMANTHA <c00l121sam@...>
Date: Mon Mar 24, 2003 4:35 pm
Subject: Re: Marfs 		c00l121sam
Offline Offline
Send Email Send Email
  
hey, how old r u? Do u have It also?

__________________________________________________
Do you Yahoo!?
Yahoo! Platinum - Watch CBS' NCAA March Madness, live on your desktop!
http://platinum.yahoo.com

Reply | Forward | Messages in this Topic (14)
#406 From: "want2bteacher" <want2bteacher@...>
Date: Mon Mar 24, 2003 4:48 am
Subject: I don't know why... 		want2bteacher
Offline Offline
Send Email Send Email
  
For some reason the posts that are getting posted are not being
displayed at the web site. I don't know why this is, but I am looking
into it. For now, those of us that receieve the email letters on
posting will get to see what is being posted. Be patient I will get
this feature fixed as soon as I can. Thanks!

Connie(want2bteacher)

Reply | Forward | Messages in this Topic (1)
#405 From: "want2bteacher" <want2bteacher@...>
Date: Mon Mar 17, 2003 4:11 am
Subject: Sorry to all... 		want2bteacher
Offline Offline
Send Email Send Email
  
I am sorry that our message board has had the old posts from December
on deleted. It was I am sure an accident. It won't happen again. I am
sorry if anyone needs to repost the question or discussion that they
want to address, please feel free. Again I am sorry for this loss of
information.

Connie (want2bteacher)

Reply | Forward | Messages in this Topic (1)
#404 From: "want2bteacher" <want2bteacher@...>
Date: Mon Mar 17, 2003 4:07 am
Subject: MOM...Please reply... 		want2bteacher
Offline Offline
Send Email Send Email
  
Hey Mom, I was just looking around the site, and I was wondering why
you deleted all the messages from the last few months on the post
board here. There is nothing showing from December on? Please let me
know, I am curious as to why this is all gone now. Thanks!

Connie

Reply | Forward | Messages in this Topic (1)
#403 From: "want2bteacher" <want2bteacher@...>
Date: Mon Mar 17, 2003 3:59 am
Subject: Sunday night chat closed till next week... 		want2bteacher
Offline Offline
Send Email Send Email
  
Well all, we had a very small turnout this week. I am thinking as
many of us had some problems, yahoo was to blame again. I had two new
members who are very eager to meet the rest of you. I hope we can all
meet up again next week to chat and discuss the questions we have. I
missed so many of you old members; John, Michael, Sheila, Anita,
Donna, Sheri, Carl, Sue, and Allie, etc. You know who you are!!! Be
there next week or be square. Have a great week. God bless.

Connie (want2bteacher)

Reply | Forward | Messages in this Topic (1)
#402 From: "want2bteacher" <want2bteacher@...>
Date: Mon Mar 17, 2003 1:22 am
Subject: Sunday night chat is happening, and yahoo stinks... 		want2bteacher
Offline Offline
Send Email Send Email
  
Hello all, I am so glad to be feeling better and back for the Sunday
night chat with you all. I hope your weeks have gone well. Mine was a
little hectic and not too much fun. I am having the day from heck
with yahoo tonight, I am hoping it is just me but let me know if you
are all having problems out there too. I hope we can have fun and
meet up in the chat room soon. See you all there. God bless.

Connie (want2bteacher)

Reply | Forward | Messages in this Topic (1)
Messages 402 - 432 of 6694   Newest  |  < Newer  |  Older >  |  Oldest
Message #
Search:
Advanced
Add to My Yahoo!      XML What's This?
Copyright © 2009 Yahoo! Inc. All rights reserved.
Privacy Policy - Terms of Service - Guidelines - Help