If someone wants to open Tuesday chat please post a message giving your Yahoo ID Invite your Hotmail contacts to join your friends list with Windows Live...
My husband's new doctor ran an echo and it was a different cardiologist that read it. Now they are saying that he does not have the Marfan configuration. How...
... Hi, The genetic test does not necessarily prove Marfan's conclusively. Several of the gene deviations have been identified than this is applied to the test...
Tahitia, Thanks for the input. The reason I am very concerned about the second cardiologist report with a different cardioligist is because my husband's father...
Hello, The only famous people that have been confirmed that I know of are Jonathan Larson (playwright), Vincent Schiavelli (actor) and Flo Hyman (volleyball...
Tabitha did a great job on her answer. If you read a little on those suspected, there are interesting comments. Paganini was the "bad boy" of his day, who...
Totally interesting! I am definately going to the library to do some reading. I only heard about Ritter recently. As far as playing a person with Marfan, you...
For Nicole and anyone else learning from this group at the moment. A note of clarification: a disorder is a grouping of symptoms but DOES NOT mean every...
My wife wants to get her email on this group so she can use the support. I am the one in our family with Marfan, as well as a couple of our children. I have...
I think it looks great! Debbie C. countrygirlcna <countrygirlcna@...> wrote: hi all i wanted to thank you for your help and let you know the marfan ...
I can't figure out how to view your Power Point. Do I have to sign up with the other group? OK Lee Katie Dudley <katiedudley@...> wrote: Very Good! ...
I'll open a "day time" chat tomorrow instead of Tuesday Hopefully some of you in other parts of the world can join us. 2pm Eastern time If there is better...
Hello all First of all I want to thank you for creating this group. I was diagnosed with Marfan Syndrome 17 years ago. My heart is failing horribly but I do...
hello keli my names rosalind. i no exactly how you feel. my partner and son have marfan syndrome and are trying to claim disability living allowance which i...
hello its rosalind. sorry i aint been chatting for a while but ive been really busy.so how do we chat them because you said the yahoo chat one is not going on...
Hello, I'm a fourth year medical student. I have a patient that I think has Marfans. She is having some weird symptoms (to me at least) and I was wondering...
Hi my name is Alisha, i am almost 17 I have Marfan Syndrome and i also have bad headaches, when i was younger i had one every day that would not go away. they...
Hi people with marfans can get severe headaches. I get them with my back. I have dural ectasia and scoliosis. i presume that you have sent your patient for an...
Both my husband and three of our daughters have Marfan's, and yes headaches, sometimes debilitating ones are frequent with them. My oldest daughter is 13 years...
... has ... was ... when ... could ... week ... There is more that I forgot to add. (sorry) This girl has been to every doctor know to man. She also has...
Sorry that I haven't been in chat lately. we have been on a Scudual Rollercoaster. with hubbys work and all. The boys got a new general practioner one that has...
Hi. I'm looking for people, preferably adults, who have had pectus excavatum repair surgery with Dr. Coselli in Houston. I understand he is an excellent...
Hi Jason, I also have had not just migraine headaches all my life, but following heart surgery suffered from about a year of having 'optical' migraines as...
