Hi everyone, I'm fine. Just wanted you all to know I havn't deserted you my computer is down temp. But I do have a friends I'm using. I have a question. I went...
For those who get messages in your email, this is a duplicate. For those who read on-line it was only on the board about an hour at the most so I'm reposting...
Hi Just trying to figure out where you have this chat to. i went into the link section under emergency chat but no one was in there, can someone pls assist me...
Has anyone heard about the "soft back brace" that is adjustable?? I caught a glimpse of it on TV, but I'm unable to find anything on the net..I know it...
Hello all, my friend's 16 year old son has been told he has Marphan's. We live in Pensacola, FL and she is having trouble finding good Dr.'s and support...
I took my daughter to the pediatrician yesterday... He measured her arm length, and was honest with me and said that he only had one child in 30 years that had...
Hi I have a 5 year old son whom was born with a BAV, he the had to have was is called the Ross-Procedure. They removed his aortic valve and toook his own...
Hello all. I'm checking in again with another question. As I'm seeing someone in the NY Marfan clinic next month, I was wondering about another criteria for...
Hello..I just wanted to post a quick note..Austins mitral valve surgery went well, they were able to do a repair, and a repair better than they hoped for. This...
I have been doing more research and found that there are many other disorders that are similar in certain ways to marfan.. such as Shprintzen-Goldberg Syndrome...
Hello Not sure how to get to the chat area.my 17 yr old son is scheduled to have MV repair surgery the 15th, wondering if there is anyone else here who has...
Like others in the group, I have Marfans with most of the classic traits. My father died of a heart attack, and my oldest sister and I have both had open heart...
Hi I'm asking about in the marfan comunity about wether i should be concerned or not about our recent visit with my 2 kids. Brittany is 9 and her recent echo...
Ok i finally was able to get into chat and noone is there. I have other things to do online so will be in the room for a while. hope someone comes along to...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday June 13, 2006 11:00...
Hello all.. I'm a second time poster here. Just wanted to put out a quick question to the group... Before you had your echocardiogram, did you have any prior...
Hello! It's taken some time to figure out how to enter the chat room. Hoorah! I am interested in some feedback from whomever this may apply to. I am 47. I...
tried tried tried to join chat this last sunday/11/06.page just locked up and never opened past chat name page.maybe next time.Yahoo really sucks for having...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday June 11, 2006 8:00 pm...
I never even knew what my valves were called except artificial.Then i looked at the little card i got with them.Along with the serial numbers and such was the...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday June 7, 2006 8:00...
Any suggestions for atrial fibrillation? This was triggered for me by a minor GYN procedure that involved IV antibiotics, injection of novocaine and pain meds....
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday June 6, 2006 11:00...
Hi all I hope you are are having a pain free day...Just finished cleaning the kitchen and thank the good Lord for my new rollator (walker with a built in seat)...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday June 4, 2006 8:00 pm...
Well I learn something new every day.I had never heard the word dural ectasia before.I have marfans and have some problems.Not as bad as some peoples,but worse...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday May 31, 2006 8:00...
Hi, I'm a new member of this board. I found out about Marfan after a recent visit to a rheumatologist for an unrelated matter-a possible tumor in my hand...
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