Hello all, I am so glad to be feeling better and back for the Sunday night chat with you all. I hope your weeks have gone well. Mine was a little hectic and...
Well all, we had a very small turnout this week. I am thinking as many of us had some problems, yahoo was to blame again. I had two new members who are very...
Hey Mom, I was just looking around the site, and I was wondering why you deleted all the messages from the last few months on the post board here. There is...
I am sorry that our message board has had the old posts from December on deleted. It was I am sure an accident. It won't happen again. I am sorry if anyone...
For some reason the posts that are getting posted are not being displayed at the web site. I don't know why this is, but I am looking into it. For now, those...
hey, how old r u? Do u have It also? __________________________________________________ Do you Yahoo!? Yahoo! Platinum - Watch CBS' NCAA March Madness, live on...
I'm 22 years old, and yes I do have Marfans. jarmitc2032a ... __________________________________________________ Do you Yahoo!? Yahoo! Platinum - Watch CBS'...
hi. yes I do have marfans I am 37 my name is Michelle, I found out when I was 36 after I had a heart attack, then I had an aortic dissection. I had 2 open...
yes I do have Marfans I am 37 found out when I was 36 my name is Michelle I have had 2 open heart operations and I have an artificial valve (st.Jude s valve)...
Hope you are doing o.k did they replace your valve.ntrain714 (michelle) Drumrman67@... wrote:I have Martfan, and I am 35. I just had aortic Graft Surgery....
My son has it. He is 16 yrs old. What does the future look like for my son? What are the treatments and how much research has been done on this Marfans? Could...
Hello...... i am 45 years old. With good health maintainance he could live to be old. I have known i have Marfans Syndrome for 11 yrs now. Chronic illness can...
hi I'm 35 years ol and I have marfans...I had an aortic disection 2 yrs ago.... ... __________________________________________________ Do you Yahoo!? Yahoo!...
hello, im sam. How r u? so u have it also? Have u had surgery yet? ... __________________________________________________ Do you Yahoo!? Yahoo! Platinum -...
no. Does every person with it have to have heart surgery? __________________________________________________ Do you Yahoo!? Yahoo! Platinum - Watch CBS' NCAA...
... go ... Hi there, this is Sheila and I did not see you in chat, were u able to get in there? I had problems and had to go offline and then come back so...
I am 45 F michigan. Found out I had marfans when I 33 yrs old. I was productive , work at a fast paced package plant. I wondered why I couldn't keep up...
IT IS ALL NEW TO ME I WILL HAVE TO TRY AGAIN. I WANT TO MEET AND TALK TO OTHERS WITH THE MARFANS SYNDROME I FEEL LIKE AN ALIEN. FEEL DIFFERENT THEN OTHERS...
hi there....well your at a good place we all here know someone or ourselves have it....I'm 35 and I have it I had surgery and dealing with meds....I and others...
Hi Everyone, Finally made the Tuesday chat, had a great time will try and get to next weeks. Just a quickie I was asked to pass an e-mail contact on to my...
I wasn't able to get into the chat. Left a message. Thought maybe I was all alone there. Will try and tune in on another scheduled day. Thanks for those who...
I hope there is something you can do for better insurance soon. There is no way someone who needs regular health care like you can be without health insurance...
HI It's Ally here. Sorry for not being in chat for quite a while now. I've been having driving lessons early on a monday morning, so being up at 1am wouldnt...
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