Nancy The worrying thing about dissection is that mostly there are no warnings or symptoms that a dissection is about to happen. I was fine one second and full...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday June 4, 2006 8:00 pm...
marfans_support_and_c...
Jun 4, 2006 11:56 am
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CHAT CHAT Home Messages Post CHAT Files Photos Links Database Polls Members Calendar Promote Invite Join us in chat every sunday night at 8:00(EST)7:00(CST),...
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Jun 4, 2006 1:47 pm
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Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday June 4, 2006 8:00 pm...
marfans_support_and_c...
Jun 4, 2006 11:47 pm
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Hey Nancy, Just got around to reading mail. Yes I would like his email addy. It would be great if the two of them could communitcate. I'm trying to stress to...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday June 6, 2006 11:00...
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Jun 6, 2006 2:56 am
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Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday June 6, 2006 11:00...
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Jun 6, 2006 2:29 pm
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Hello Not sure how to get to the chat area.my 17 yr old son is scheduled to have MV repair surgery the 15th, wondering if there is anyone else here who has...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday June 7, 2006 8:00...
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Jun 7, 2006 11:57 am
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Hello all.. I'm a second time poster here. Just wanted to put out a quick question to the group... Before you had your echocardiogram, did you have any prior...
Hello Scott, I have heard of heart palputations and heart (flutterings) follower by light headiness. My daughter had mitral valve prolaspe and those are the...
Welcome Elisa, I guess we're a generational family of marfs too. Though not diagnosed I know my grandmother, & mother both had it. Me & my daughter have been...
Nope, I had "heart issues" even had a cath done. No one recognized marfans in me. I'm short & fat for marfans (5'9", 143lbs) When I had the echo done they...
Any suggestions for atrial fibrillation? This was triggered for me by a minor GYN procedure that involved IV antibiotics, injection of novocaine and pain meds....
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday June 7, 2006 8:00...
marfans_support_and_c...
Jun 7, 2006 11:29 pm
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Welcome to the group! When I had aortic surgery it was an emergency so they couldn't really do a repair at that time although from speaking to a surgeon...
Mike, I'm not getting how to enter the chat room. I have my ID and password, but have never been able to figure out how to chat. I thought we Marf's we...
I have had a total of three "occurrences." One was a dissection and I went to the emergency room, had surgery and brought home some Dacron and a neat little...
Hello! It's taken some time to figure out how to enter the chat room. Hoorah! I am interested in some feedback from whomever this may apply to. I am 47. I...
Julie, Best of luck with everything! Going the disability route is a long hard road, we just went through all of that with my husband, Tony. Perseverance is...
I haven't been able to for some time. I have a new computer, and all I get there is a broken link. I remember having to download something before to get on...
Julie I know what you mean about not feeling in control. Ask the cardiologist, after you get through your cardio stuff, if you can see someone for depression....
Lee, Are you saying you've only had 3 echos? No regularly sheduled echos and CT's/MRI's after the first emergency? Marsha From: Lee Parks <wt_lparks@...>...
I was getting echos yearly before the first incident. I had an enlarged aorta but the question was, "how enlarged should it be when the decision is made to...
I never even knew what my valves were called except artificial.Then i looked at the little card i got with them.Along with the serial numbers and such was the...
I am new here and just wanted to say hello... My daughter is getting some tests done next week, the doctor mentioned Marfan, and I have never heard of this...
Hi Bridgette, My son is almost 6 and was dignosed a year and a half ago. He did not have the genetics test for the diagnosis. Due to having slipped lenses in...
Hi, thank you for your post. I will let you know the updates next week after my daughters doctors visits..she is also going to an opthomologist. Of course I am...
Bridgett, Welcome to the group. My daughter had marfans so I know of several things that she had.Eye problems was one of them. a sunken chest from birth...
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