my son will be 2 in June and he was diagnosed with MFS. He has a Milk/Soy protein allergy also. so he will be starting daycare next week and i as a mother was...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday May 2, 2006 11:00 am...
marfans_support_and_c...
May 2, 2006 2:56 am
3046
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday May 2, 2006 11:00 am...
marfans_support_and_c...
May 2, 2006 2:27 pm
3047
Hello I am new to the group and my name is Eileen. My husband John has had Marfans since birth. He is from a family of 4 siblings with 3 of them being...
This guy I watch seems to instinctively know when to stop. If we are out someplace and he suddenly gets tired he can non verbally communicate with me that he...
Hi Eileen, My name is Lori and I am a marf along with my mom, brother and son. From what i have experienced with my mom you should have your husband see the...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday May 3, 2006 8:00...
marfans_support_and_c...
May 3, 2006 11:55 am
3051
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday May 3, 2006 8:00...
marfans_support_and_c...
May 3, 2006 11:26 pm
3052
When I was little, my folks were warned to avoid blows to my head, and thus guard agianst blindness. For my own son, I let him bicycle, even though he fainted...
I think that the reason no one has answered you publicly yet is that this could be a symptom of congestive heart failure, and a dangerous thing. It could also...
I am thinking of getting a small trampoline for him. Get him to use his toes more. Of course at 20 months he will need to be held. He has only been walking...
Eileen, I read Lori's post and it made me re-think what this original post from you was about. When you say "congestion," do you mean as in coughing up mucous,...
Hello! We live in Texas (anybody else in the group?) Our son has just turned 16 and was diagnosed last year with emerging Marfan's and MAAS phenotypes. He...
you cant emerge to getting it either its in your genes and you have it or you dont ... __________________________________________________ Do You Yahoo!? Tired...
Although it does effect people in varying degrees. Some people are more affected than others. gidget leach <rdrose4you@...> wrote: you cant emerge to...
that is very true but its either you have it or you dont you cant emerge i think these doctors need to know what they are talking about before they say lol ...
A stress test can be a very dangerous thing, not normally done with marfan. Details, please? Judy Kennerly <momisblonde@...> wrote: Hello! We live in...
My mother has Marfans and she had a few stress tests done. I think it was not as intense as what a normal person goies through but they still did it. ... My...
My wife recently had a stress test done and it was not at all like I remembered stress tests. They used medication to stress the heart while monitoring the...
Hello Everyone, I am meeting with my doctor in two weeks to discuss the possibility of getting an INR machine and doing the testing at home. If you are a ...
I'm not sure - his cardiologist's nurse at Cook Children's Hospital in Fort Worth said they were going to schedule his ECHO instead of waiting until next year...
Hi Judy! According to what I have receiver recently from NMF there are apx 340 of us in the Houston area. I know 2, me and Floyd. Where are you? As for...
Hi Judy, My name is Diane.... I know of 3 people in the Houston area with Marfan They are my daughter and 2 grandsons... I also have Marfan but now live in...
ok I don't post much, but I read all the messages that I can. I have "a conictive tissue disorder similer the that of Marfans syndrome" at least that is what...
CHAT CHAT Home Messages Post CHAT Files Photos Links Database Polls Members Calendar Promote Invite Join us in chat every sunday night at 8:00(EST)7:00(CST),...
marfans_support_and_c...
May 7, 2006 11:46 am
3069
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday May 7, 2006 8:00 pm -...
marfans_support_and_c...
May 7, 2006 11:56 am
3070
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan Chat Time Sunday May 7, 2006 8:00 pm -...
marfans_support_and_c...
May 7, 2006 11:26 pm
3071
Chat is open, if anyone is having trouble finding us IM me using Yahoo or Hotmail - Iowamarf...
has everyone already left the chat? iowamarf <iowamarf@...> wrote: Chat is open, if anyone is having trouble finding us IM me using Yahoo or Hotmail -...
Having problems with message search?
Fill out this form to ensure your group is one of the first to be migrated to the new message search system.
