Good morning, Thank you for the contact. It's a strange place to be- mentally and physically. I have always worked, almost compulsively. I always thought...
Donna, Thanks so much for the information. I hope your pain dissapates. I get so tired of the pain. I am going to contact both Dr. Sponsellor and Dr. Long....
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday April 4, 2006 11:00...
marfans_support_and_c...
Apr 4, 2006 2:56 am
2967
Enter your vote today! A new poll has been created for the marfans_support_and_chat group: Chat is an important part of this group! We'd like your feedback...
marfans_support_and_c...
Apr 4, 2006 3:10 am
2968
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday April 4, 2006 11:00...
marfans_support_and_c...
Apr 4, 2006 2:25 pm
2969
O Prefer general chats (current format) My opinion is keep it the same. Why separate everyone into groups, we are
already different from so called normal...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday April 5, 2006 8:00...
marfans_support_and_c...
Apr 5, 2006 11:57 am
2971
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday April 5, 2006 8:00...
marfans_support_and_c...
Apr 5, 2006 11:26 pm
2972
Dear NMF Members, The National Marfan Foundation (NMF) is excited to announce an important breakthrough in Marfan research which was published yesterday in ...
My 5 year old son has been on Losartin for over 2 years. He is one of three children that Johns Hopkins, and Dr. Dietz, have been following. We have seen...
I wonder if they're only doing this in younger children? We've been seeing Dr. Deitz for almost 10 yrs and the only thing he has my daughter on is beta...
Would you be willing to share (in laymen's terms) what differences they (or you) have noticed? This is almost too good to be true and I am forcing myself to...
I could not agree with you more Lee, I would love to not have to "worry" about this anymore. What we have noticed is with our sons heart, the progression of...
CHAT CHAT Home Messages Post CHAT Files Photos Links Database Polls Members Calendar Promote Invite Join us in chat every sunday night at 8:00(EST)7:00(CST),...
marfans_support_and_c...
Apr 9, 2006 1:46 pm
2978
Lisa et all.. Here is an excerpt from one news article that is out there at the moment concerning Dr. Deitz's research. I don't know how he has decided up to...
Hello, I am one of the other moms who's child is on Losartin(Cozzar). We were just at Hopkins the last week of March, and while we were there Dr Diez told us...
Samantha, What is your thesis? OK Lee Samantha Molnar <samanthalynn03@...> wrote: My name is Samantha . I am a 20 year-old college student. I am doing a...
http://www.donorschoose.org/challenge.php?id=38 Im a teacher, and found this really amazing site thru EBAY. Please have a look at it, and maybe pass the link...
As I mentioned, my son, who is HUMAN and not a MOUSE has been on it for over two years, Blake has been on it for over a year and a half, and to my knowledge is...
Christy, I'm sorry if you were offended but I did not call anyone's son a mouse or question what you said. I posted several hours before Anita did, where the...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday April 11, 2006 11:00...
marfans_support_and_c...
Apr 11, 2006 2:56 am
2987
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday April 11, 2006 11:00...
marfans_support_and_c...
Apr 11, 2006 2:26 pm
2988
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday April 12, 2006 ...
marfans_support_and_c...
Apr 12, 2006 1:33 pm
2989
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday April 12, 2006 ...
marfans_support_and_c...
Apr 12, 2006 11:27 pm
2991
To All, Dr. Dietz is great. He is a wonderful, personable person, really makes you feel comfortable. My daughter has been seeing him for 10 yrs. He is a...
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