Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday March 1, 2006 8:00...
marfans_support_and_c...
Mar 1, 2006 1:01 pm
2859
From the group home page there is a menu on the left side. click on the chat option and it should throw you right in. good luck, Jolynn ... room...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday March 1, 2006 8:00...
I know that I have DE but I think because I have harrington rods in my back, from Marfan realted Scoliosis, amd they go past the point of the DE I have no pain...
Hello all - I've been trying to get life insurance for my husband who has Marfan's. The first company turned him down, and now I'm told Marfan's is usually not...
i have ligfe insurance through work and a seperate onoe, the name of the company slips my mind but when i get home from work i can look it up for you...
Help Please!!!! I have Marphan Syndrome with Dural Ectasia. I delievered a baby girl on 11/1/05 by C-Section. I received a Spinal block for anesthesia....
HI, I noticed no one had replied yet. I saw your post a few days ago. I guess it is because no one has been exactly in your situation. Lots of people here have...
I agree with Jolynn, I have DE but cannot offer much help because I am still researching and trying to find help myself. About the only advice I can offer, is...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday March 7, 2006 11:00...
marfans_support_and_c...
Mar 7, 2006 3:56 am
2872
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Tuesday March 7, 2006 11:00...
marfans_support_and_c...
Mar 7, 2006 3:25 pm
2873
Just got my info from the NMF today. I have not gotten a chance to go through it, but I plan to start volunteering after my daughters surgery in April. I am so...
Hi everyone, Good news! Wyatt's vision in his right eye has improved even more,and his left eye is still the same. So we keep things the same and go for...
Our prayers will be with you. I am sure she will get through everything with flying colors (after all she has you for a mom to look after her) sending...
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday March 8, 2006 8:00...
marfans_support_and_c...
Mar 8, 2006 12:57 pm
2877
Reminder from the Calendar of marfans_support_and_chat http://groups.yahoo.com/group/marfans_support_and_chat/cal marfan chat time Wednesday March 8, 2006 8:00...
My local news paper is ding an artcile about Marfan Syndrome. They are interviewing Audrey ana me. Would it be OK for me to mention this group. It has been...
Jolynn, I don't have any problem with the group being mentioned but would suggest National Marfan Foundation information be given also as it is medically...
I did speak wiht Eilene @ NMF she is e-mailing me some things. She said she was glad that I seemed so comfortable and able to comunicate. I am going to print...
Well i don't quite know where to start. I have been having back problems since about the middle of November. I have also not worked since the middle of Nov. I...
Hi Lori, I just recently started using a cane. I did have scoliosis surgery (harington rods) when I was 11. Now I am 31. I have alot of the pain you described...
Jolynn, I am sympatheitic to your sintuation. I also have marfans with dural ectasia and have had so many heart surgeries that my Nerosurgeon will not do any...
Hello Heidi, I do not have any pain from my Dural Ecstacia (not even positive that I have DE I am just assuming that is why I have a big hard bump on my lower...
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