Hi My kids are pretty thin especially my daughter. I don't make an issue of at all but if my daughter is eating well i praise her since she is the lightest. It...
What is unfolding of the aorta and aortic knuckle calcification? __________________________________ Start your day with Yahoo! - Make it your home page! ...
Have you been checked out for Dural Ectasia...it is common in Marfs and is unrelenting pain...Tegretol has been shown to be useful here...check out the stories...
I would like to join, but am not sure what to do now. Hopefully all I have to do is reply to the email you sent ... Yahoo! Shopping Find Great Deals on...
... Hi...I am not sure but I would definately ask your cardioligist if thats what it says on your report... the knuckle calcification sounds like it could be...
... I have to do is reply to the email you sent ... Hi scotty... i am pretty new here too and have had a bit of trouble figuring this out,,,but i think i have...
Hi Scotty and Tonia: Welcome to the Marfan Support List. This a great way ro share experiences, ask questions, etc. What states are you from? Take Care, Jon...
... experiences, ... Hi Jon...I am in Australia...so quite a far distance away...but always needing to learn more...especially now I have figured out how to...
Hi Scotty & Tonia You are almost there!! Just click on "chat" after 8 pm (US eastern time) on Sunday!! Hope to see uou there. Tonia, I believe that will be...
... Oh my gosh!!! I really have no clue how all of this chatting, emailing through the support group, and the other services offered through this web site...
http://www.ctds.info/index.html This lady has some interesting points. Maybe I'm grasping at straws. I would like to think if this is only a predisposed...
hey scotty, She does have some very interesting points, especially about the rickets. When i was born, my feet were turned inwards (toes facing each other)...
Hi everyone, I took the paragraph below from this web site. "It is interesting to note that several of the symptoms linked to Marfan syndrome such as...
I am a 50 year old male with Marfans and I have a young family of 5 children (oldest is 11yrs.) Are there any informal statistics (a formal database would...
Hi Lee.... I have a little tid-bit of info on the longevity and guess what its GOOD NEWS... Back in the early 1970's Mrfans people could expect to live to...
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Dec 18, 2005 1:33 pm
2568
... now...but it would have been on something to do with the Aortic Dissection side of Marfans because that is my main concern as I have an aneurysm myself...
I have had three occurances of a dissected aorta or aneurysm with surgery over the last 5 years. My last incident was an arch replacement/repair with Dr....
... I'd be open to suggestions. ... My own opinion, is that if you have been paying into social security for your adult life, and there are people counting on...
Don't we need a Dr. or two to state that we are disabled? Heck, I just went for my Echo today, only to find that my descending aorta had also dissected back in...
more then likely if you go to the appeals courts youw illbe approved meghans was pretty easy mind you she is was legally blind at the time i am in the process...
... I'm too busy trying to make enough $$ to backpay for my surgery, to pay for a Lawyer to go to Court. Let alone follow it through to Appeals. Anyone else? ...
But don't we still need a Dr. or two to say that we are disabled? NY is vicious, I have been there for other reasons. This should be a Federal issue, since...
all you need is all your medical files to say you have what you have ... __________________________________________________ Do You Yahoo!? Tired of spam?...
Lee et all, I am planning to begin this process also. When I first started thinking about it I called a lawyer and they told me straight out they don't get...
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