Hi, Something strange has happened with my echo cardio grams and I was wondering if anyone else has had a similar experience, (and if so, what the heck is...
Hi, I'm Elizabeth. I suspect my family has Marfan's. I was wondering if anyone has had experience, or knows about, the strange cardiac symptoms I've been...
Hi, I was just wondering if anyone watchs Grey's Anatomy, tonight they mentioned Marfan Syndrome in passing. Just a mention, but something none the less. ...
I am going to sit with my mother in law. She is very frail and needs tending to from time to time. She is slowly dying of cancer and so we all try to spend...
Hi there - I've been on the list for a couple of weeks - my son is 5 and is 135cms tall (4 foot 5 inches). He is being checked out for Marfans. I don't know...
Hello everyone! I wish to tell you of Dr. K M Cherian from India. He is arguably India's best, and one of the world's foremost cardiac surgeons. He performed...
Hi, My husband has just been diagnosed with Marfan's. In a couple weeks he will be going to get open heart surgery to replace a couple valves and also patch up...
Does anyone recommend a good Rheumatologist in the South Shore area? One that is accepting new patients? For some reason, I can not get an appointment. All...
Hello Everyone, My name is Megan and although I am not necessarily new to the gruop, it has been awhile since I have been around here, so it feels new. I am...
That's great! I'm so glad for him! What is hey hole surgery? Tammy reevesmaesteg@... wrote: My 10 year old son had 2 lens removals with keyhole surgery...
My 10 year old son had 2 lens removals with keyhole surgery last month - they don't do implants in the UK - he's had contact lens & his eyesight is brilliant...
We are a marfan family in Mercer PA. My son was diagnosed 3 yrs ago when he wad 3. Since then my husband, mother in law and others have also been diagnosed. We...
Hi everyone! This was an idea thrown to me by a friend. We hear of stem cells being utilised to treat many unmanageable situations. Perhaps it could be useful...
Hi all, I wished to know what aortic dissection felt like. I have been feeling some tingling pains over my thoracic abdominal area, mostly at night. But they...
hey, how old r u? Do u have It also? __________________________________________________ Do you Yahoo!? Yahoo! Platinum - Watch CBS' NCAA March Madness, live on...
Hi again everyone! Thank you so much caring to send in your thoughts to my query. I deeply appreciate the fact that you took the time to reply The tinglings...
Hi Everyone: I just wanted created a new group for parents of kids with Marfans. Here is the web address: http://health.groups.yahoo.com/group/marfmoms It is...
Hi I am somewhat new to "Marfan" the word but I have delt with the symptoms for as long as I can remember. I am in my early thirties and I had s/p fusion...
hey everyone my name is jon i am a 32yr old male i have marfans and so has most of the men on my fathers side marfans has been genetically passed through my...
Hi everyone its Sue from the UK again, Mark my husband (that still sounds strange to say as we only got married on the 20th August) is seeming to have trouble...
My son is currently being tested for Marfan. he turned 2 the end of August. He was diagnosed at 4 months with bilaterraly dislocated hips, has weak ankles,...
I am on yahoo messanger as want2bteacher so if you need help just holler at me. I hope to see more of ya there. Things are going well with the eight of us but...
I don't really know what all happened in here while I was gone for a few days with daughter getting lens surgery, but let's all just move on and get along. No...
Hey we have not seen ya in a long time if you are out there and can read this please respond. We miss ya like crazy and love ya always. Please please tell us...
Hello all... sorry been so long since I posted but I have been busy with Jessica's eye surgeries as well as moving my dying mother in law into a new house with...
meghans surgery went well still havin a hard time seeing a little but she can see the tv from far back now she had both eyes done at once no pain but blurry...
Hullo Everyone, As some of my fellow marflings know I am currently undergoing the pre-operative procedures required before having slightly more than half of my...
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