That's great! I'm so glad for him! What is hey hole surgery? Tammy reevesmaesteg@... wrote: My 10 year old son had 2 lens removals with keyhole surgery...
Hi there - I've been on the list for a couple of weeks - my son is 5 and is 135cms tall (4 foot 5 inches). He is being checked out for Marfans. I don't know...
I think that people use the bone age test to predict eventual height, but the predictors are not, as i have heard from the group, usually accurate when marfan...
Hi, Something strange has happened with my echo cardio grams and I was wondering if anyone else has had a similar experience, (and if so, what the heck is...
Hello RR! Yes, your situation sounds very familliar to me. I am a 26 yesr old female, 5, 6 and only 75 pounds. I have been to the ER on many occasions...
Hi Dave: This is Jon rodis from Boston. I am 47 have had the valve and root replacement and I am a member of the MA Chapter of the NMF. I also have a...
Jon, Yes, they did a CT scan, an echo, and an MRI. Well actually I was in the actual hospital by the time they came up with the acid reflux conclusion, and I...
Jon and RR, I know, it is scary. But I KNEW something was wrong! You know, sometimes, you can just tell that something is wrong in your body! I actually...
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Nov 6, 2005 2:06 pm
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Hello Everyone, My name is Megan and although I am not necessarily new to the gruop, it has been awhile since I have been around here, so it feels new. I am...
Hi, My husband has just been diagnosed with Marfan's. In a couple weeks he will be going to get open heart surgery to replace a couple valves and also patch up...
Hi, My husband has just been diagnosed with Marfan's. In a couple weeks he will be going to get open heart surgery to replace a couple valves and also patch up...
Hi, My husband has just been diagnosed with Marfan's. In a couple weeks he will be going to get open heart surgery to replace a couple valves and also patch up...
Hi Heidi and Jon, I thank you both from the bottom of my heart! (sorry, had to use the pun.)I am a bit scared but releived that I am not crazy. I KNOW...
Jon and Heidi, After reading your post, I got right on the phone and called Quincy Hospital. I asked for radiology. I explained that, "I have had several...
Does anyone recommend a good Rheumatologist in the South Shore area? One that is accepting new patients? For some reason, I can not get an appointment. All...
Hi I had one after my bentalls They called it a TOE. They sedated me and put a ultrasound down the asphragus to observe the heart etc from behind. Sue R...
Hi when i found out i had marfans my daughter was only 5 and my son only 9. I just knew they both had it also but i gave them time to adjust to the fact that i...
I am the one who wrote the original letter you are referring to, and will quote it here, in part. " When I had my first heart surgery, and my children were...
What is Bentalls? -R ... and put a ultrasound down the asphragus to observe the heart etc from behind. ... Service. ... http://au.messenger.yahoo.com...
Sally, your obvious love and concern for your children is so evident in what you write. What you say word for word is not what you children will process. I...
"Does anybody ... Hi syerha, First of all, welcome to the very supportive Marfan community. And I hope you find it to be a safe, comforting sounding board...
Dear Rachel, You did the smartes thing possible. Unfortunately, we don't yet have a network of doctors who are completely specialized in this condition,...
