Thanks Jon for the best wishes and the support. I will be leaving for Houston next Saturday and hopefully have the surgery on the 13th or 14th. Joe ...
Thank you for your prayers Michelle it is important to let God handle things. I am a firm believer in the power and importance of prayer. Thank you again! ...
Hi everyone its Sue from the UK again, Mark my husband (that still sounds strange to say as we only got married on the 20th August) is seeming to have trouble...
go to the main part and click on chat ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
Hi Joe, It looks like I may be joining you in Houston. My local doctors (in Tulsa, OK) did not have the expertise to do the aortic arch replacement so Dr. ...
Well that was really easy. Thanks. I guess I was an hour late? I am in Central time so it should be at 6 pm? Lee ... __________________________________ Yahoo!...
most will be on after 6ish mount time ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has the best spam...
Hi Sue, Velda from Texas here. I don't know if it is a common Marf problem or not, but it is troublesome for me now and again too. Take care, jope to see...
Hi Sue: There are several people I know with Marfans that have swallowing issues of some kind. (including me) Very little research has been done in this area ...
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Oct 9, 2005 12:37 pm
2374
Hullo Everyone, As some of my fellow marflings know I am currently undergoing the pre-operative procedures required before having slightly more than half of my...
My son is currently being tested for Marfan. he turned 2 the end of August. He was diagnosed at 4 months with bilaterraly dislocated hips, has weak ankles,...
Shulamit...I don't like the idea either of wearing a bracelet or something that have all my information....The only thing I have is a ID in my wallet that...
The Medic Alert symbol has become our family crest! LOL! All of our family members who have Marfans wear either the necklace or the bracelet. I would imagine...
Well, I'll tell you...I could barely talk at the scene of that accident, and for all I know, I could have hit my head. But NO ONE checked my purse for info. ...
hey everyone my name is jon i am a 32yr old male i have marfans and so has most of the men on my fathers side marfans has been genetically passed through my...
Hi Jon Where do u live?? am 39 Male from Toronto, planning to have Aortic root Surgery with a year, so terrified. please write me with more info, what u been...
Hey jon. My name is Ken. Im 29. Got the marfans. Nothing really major has happened to me yet excepete for lens dislocations in my eyes. My mom and bro...
Hi Jon: Welcome to the group. There are a lot of nice people on here who either habe Marfans or a family member that has it. Feel free to write on-list or...
Hi Ajaya and Everyone: Please feel free to write me about the surgery, etc as well. I have been through it and I do alot of research about Marfans that can...
I understand not wanting to have the bracelet or necklace that's real obvious but remember what it's for! The paramedics in my area said they don't have time...
Shulamit wrote: "I imagine that if the patient is talking, they jump to the conclusion that they can get whatever info they need directly from the horse's...
Hello all... sorry been so long since I posted but I have been busy with Jessica's eye surgeries as well as moving my dying mother in law into a new house with...
That was very rude. Who are you, the typing police?? Some people are better
than others so try to take a chill pill and learn to be a little nicer. ... From:...
Hi Ken & Jon, My name is Heather, I will be 31 this coming Sunday. I also had the aortic
valve replacement in 1991 and both lenses removed from my eyes (no...
Many of us are at least half blind. Some of us use reading programs. Sometimes the reason for a special request is personal. Please let's support each other....
Connie congrats to you and Jessica on the results of this surgery. I hope that everything goes well with the next. God Bless Lori ... From: Connie Snyder ...
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