Hey all, sorry have not been online much but things are real hectic here. First of all, Jessica is scheduled to have the left eye artificial lens implant...
Hi Connie: I wish Jessica and your family the best. It is very difficult dealing with Marfans and its many complications, but a family's love and support are...
hi Connie sorry to hear things have been a bit rough. Please let us know how Jessica is getting on. Sue Connie Snyder <want2bteacher@...> wrote: Hey all,...
Connie, My thoughts are with you and Jessica. I am sure that it can't be easy for either of you! Debbie C. __________________________________________________ ...
Connie; Hang in there!!! I know that dealing with marfs is always a challenge, heck I'm 47 years old and sometimes get so blasted frustrated that I just want...
im sorry that she has to go through all that i hope she gets better meghan had watned to call her but i will have her wait till i hear from you ;meghan is due ...
Dear all, This prayer was written by Leila Gal Berner May the One who blesses all Life, bless and heal these people who struggle against illness. May those...
Hey Gidg, I was not trying to be rude, I am not good at multi tasking. I need to add you to my list so I can contact you. Give ne a buzz as soon as you can! ...
meghans surgery went well still havin a hard time seeing a little but she can see the tv from far back now she had both eyes done at once no pain but blurry...
Gidge, That is wonderfull! She got the inplants right? I think even with our eyes working better it takes a while for our brain to catch up. Wyatt kept saying...
not sure what the age is thats something to ask the doctor maybe she got the implants i know she can see but like ya said her brain has to get used to it she ...
I have a question.. for you Gidget. When they put the artifical implants in. They can either put one in that sees far and one that will see close up. And she...
basicly what they did was take her glasses lens prescipt in the lens cionni she has to carry implant cards with her at all times it has eveyrthing on it they...
Yes Jessica has a card too but it is not good for them to carry it at all times... as it could get lost. It is to be kept in medical file for when need serial...
Hey Gidget & Connie I have a number of cards that I carry with me, granted I am an adult (HA!?!?!), so I don't lose things (yeah, right). But I have copies of...
Do any of you use a medic ID? After my auto accident, that hit me on the left side, I could barely breath. I tried to explain to the EMT that my heart was on...
thats good ideai should see what they hafe for marfans ... __________________________________________________ Do You Yahoo!? Tired of spam? Yahoo! Mail has...
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Sep 11, 2005 12:12 pm
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hi I and my 2 kids wear bracelets. They aren't that noticeable Sue Shulamit <shulamitw@...> wrote: Do any of you use a medic ID? After my auto accident,...
I have the Medic ID bracelet. I wear it always. I also put the stickers they sent with it on my car windshield and one on a window close to my front door. I...
I'm so glad things are progessing well. <whistles and clapping>!!! lisa Lisa in Pensacola __________________________________________________ Do You Yahoo!? ...
Hi all I just wanted to point out that in an emergency the first priority is to get the patient stabilized, THEN they will look for bracelets or other...
Hi... Some of you are friends or school personal that care for Jessica. Others of you are also friends but have Marfan same as Jessica. I am writing this to...
Connie, My prayers are with Jessica and also with you. This cannot be an easy time for either of you. The two of you have been through a lot, but with our...
meghan went through the very itchy to i put the patch on so she couldnt get to it meghans iris pops up alot and you can see hers bounce but thats normal meghan...
Hi Connie, I haven't been too active on the MFS site. I will pray for Jessica. And even if nothing can be done now - medical advances are such that in the...
I am about to scedule an aortic arch replacement (or repair) and I have some questions about logistics of this process. I am planning to join the online chat...
Hello Lee I am not the best in the world at giving directions, but it seems to me that if you got this far you are almost there! Just click on chat and you...
Hi... I am writing to ask of others experience with pupil and iris dislocation. My daughters occured after artificial lens implant surgery recently. The...
