hello my name is kelli and i just joined and my father in law has marfans and we think he might be the oldest living person does anyone know how to find out?...
Hi Well it's been a long week but things seem to be looking up. Brittany was fitted with her brace on Tuesday and after returning for a few places to be...
Hey all my thoughts are with you all as the chat happens tonight. I have to babysit my sick mother in law... as her family members are all away on other doctor...
Hello, I am new to the group with some questions and figured that this group would be the people to ask!! Basically I have conflicting ideas over what I am...
I AM WRITING TO ASK YOU ALL FOR FORGIVENESS... AS I HAVE NOT MADE THE CHAT IN MONTHS NOW. THINGS HAVE BEEN HECTIC HERE, BUT.. I ALSO HAVE BEEN AVOIDING THE...
It keeps saying.. logging me in to room as want2bteacher.... but i cant get past that screen... I will keep trying but until then I am also downloading my...
i have been having touble with meghan keeping and getting friends because she is differnt no one wants to hang or talk to her anyone in here have that trouble?...
First of all, thank you to all who answered my post. I can't tell you how hard this decision has been for us and how greatly you have helped us to fully weigh...
I am aware of the issue as of today in the photo area and the fact that we are over the limit. I just want you to all know.. the owners of this group are...
Jessica is wanting to speak to someone her age who has undergone the eye surgery. It will help her a great deal to cope with it a bit better. And we want...
Hi everyone, We had Wyatt's one week check after his sye surgery today, and the Dr. said his eye is doing awsm. He said it looks so good we dont have to go...
Connie, You have always been there for others, it's okay to take a break! Especially since your family has needed you. We all understand that. Every month...
My name is Shirley and my husband has marfans. He will be 73 yrs. old on July 12th. He has had four aneurysms. Three have been repaired. The 4th one is between...
Hello everyone. I am new to this list and just wanted to introduce myself. My name is Andrea, I'm 24 and I live in Utah. i have known that I have had Marfan...
Please all, enlighten me once more... Jessica my 12 year old with Marfans has had her vision deteriorate over this last year dramatically. It is to the point...
Hi all, We are home and doing well after our sons lense removal surgery in Portland. The surgeon said everything went perfectly and his eye looked good...
Hello everyone I just wanted to let you all know that we arrived at the Ronald McDonald house in Portlad about an hour and half ago, we are settled for the ...
Is anyone else getting Spam that is identified as something from here? I have gotten 4 pieces today that said they were from this group and it wasn't! I...
I have another question for you. Wyatt is getting taller and taller and longer and longer, but he is not gaining weight. He is starting to look like a...
I am so pleased to find this group. It has been a while since I have used a group so my etiquette (sp.?) may be dusty. I am 49 years old and have Marfans. I...
... Lol, Ya, wranglers fit my son the best, but the funny thing is that his hip bones are so wide that the slim fits are to small in the wast. His bone...
I have just recently been told that I fit the Marfan' Syndrome group. I was originally diagnosed by my internal medicine doctor that I have fibromyalgia....
Hi, I am new here. I am not sure if I have Marfan Syndrome or not. I will be going to the Mayo Clinic in two weeks to find out. I do have other heart...
Hello everyone, I have some questions for you females out there with Marfans. I am married to a 25 year male with Marfans and we have 3 children together well...
Hi Connie, Sorry to hear you have sick family members- make sure to take time for yourself as well. How has Jessica been? Is the strep related to any drugs...
Sorry all I have missed the chats since right before Jessica's heart surgery. I do miss you all, but I have been busy caring for sick family members. This week...
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