Luckily, she is young, and will adjust, if she has no choice. My son wore the Boston and Milwaukee braces until he was a teen, and had the surgery. I spent...
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thanks for everyones feedback on this one it's much appreciated Sue Sally Tomson <stomson98003@...> wrote: Luckily, she is young, and will adjust, if she...
Hi everyone, We had Wyatt's one week check after his sye surgery today, and the Dr. said his eye is doing awsm. He said it looks so good we dont have to go...
Wonderful news Larie! Debbie C. larie beck <ty_ree_b@...> wrote: Hi everyone, We had Wyatt's one week check after his sye surgery today, and the Dr. said...
i have been having touble with meghan keeping and getting friends because she is differnt no one wants to hang or talk to her anyone in here have that trouble?...
Catie had that trouble when she was younger (she's 18 now). I'm not sure if that was because of that's just being Catie or what though. A lot of kids shied...
First of all, thank you to all who answered my post. I can't tell you how hard this decision has been for us and how greatly you have helped us to fully weigh...
Jessica is wanting to speak to someone her age who has undergone the eye surgery. It will help her a great deal to cope with it a bit better. And we want...
I am aware of the issue as of today in the photo area and the fact that we are over the limit. I just want you to all know.. the owners of this group are...
Connie, I am so glad that The Lord has given you guidence, and hope. I defenatly believe in the power of prayer also. For some reason The Lord has chosen to...
meghan will be having the surgery in august she is legally blind in one eye and almost in the other they sayd this surgery will get them to see almost perfect ...
Please make sure she is getting counseling so that she learns how to handle this. I didn't and I ended up becoming an introvert and so extremely shy. ... ...
she has been in therepy and psr for the past 3 yrs there are even some teens in here that have not been treating her very well well she used to come in the ...
Larie, Hang in there. You cannot question why some people have health issues and others do not. I had a friend once ask me why I was not bitter because of...
Kelli, How old is he? My grandmother had Marfans and died from cancer, not Marfans at the age of 72. Now she only had a mild form of Marfan's and wasn't even...
Celeste, Hang in there. We all have the "WHY ME?!!!!!!!!!?????????" days, weeks, sometimes months. I was 3 when I was diagnosed and so I dealt with it my...
Hang in Gidget. It is so hard to be a teen and then to add being a Marfan on top of it, that makes the road a harder trip. Let her know you love her and that...
... I was wanting to find some other kids for my son to meet that have issues similar to his so he wouldnt feel so alone in this, and his cardiologist...
she is in a therepy group with kids that have add and bipolar but these kids also have parents that donot care if they get in trouyble or not and i dont want ...
Yes she needs counseling.. most of the problem lies in how she feels other perceives her not truely how the others are seeing her. Have her talk to Jessica....
Hello, I am Kelli's mother in law. My husband will be 73 in 10 days. He is 6' 6 1/2" tall and weighs 152 lbs. He has had the aortic root replacement with the...
i will have her email her meghan is 15 she thinks big of what others think and say about her and takes it hard if kids are mean or say mean things her email is...
does she have trouble now with friends i have trouble with her being really immature not sure if its due to her having strokes or just a kid thing she is not...
Hi Shirley. I find your case very interesting. My daughter, Brianna, was diagnosed last year with Marfan's. We have been trying to determine if there is a...
Shirley, I pray that God will watch over your husband and keep him free from pain. May God bless you and your husband with many more years of happiness. ...
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marfans_support_and_c...
Jul 3, 2005 12:29 pm
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Hi Michele, My husband's parents did not have marfans. Of their 7 children, Bud is the only one with marfans. We believe his paternal grandfather had it...
Hi Shirley, I My marfans came from my maternal side of the family, my mom and grandmother both having mild traces of Marfans. My great-grandfather was over...
