Okay just a tad of background first... did the cardiac ablation on the 12th of this month. Apparently I'm in the 5% that isn't successful. Something about...
hi Lisa I'm sorry things haven't worked out for you with the ablation. When Jonathan had his they said it was very possible it wouldn't work because of where...
Hello Evryone, I am hoping there is someone out there that can recomend a eye Dr. for my son in the Spokane Wa. area. We are looking for a new one. Thanks,...
I'm still alive...... Been very depressed but, I will make it. Having alot of problems with painful hips knees and back. Nothing I can do right now about it....
Wishing you strength and better health!!! Here is a nice thought to keep close to you: -We may suffer in body, as we may suffer in mind but the angels who...
Thanks for the reply I am headed down to Texas and Baylor University and seeing a surgeon Dr Joseph Coselli he has done over 2500 of these proceedures and has...
my daughter of 3 months old has severe marfans she is in intensive care and has a lot of problems her heart is swollen and streched, her throat keeps colapsing...
Hi Lisa, I apologize if this sounds naive, but did you ever get a cardio conversion? That fixed my husband's arrythmia immediately. ~ Beth ... ===== ...
Hi everyone, Just wanted to let you know that Jaden's surgery went very well. Even the doctor's where doing a happy dance once it was all over. They were more...
The best thing I found in a hospital for that sore throat is to order tea with lemon, throw out the tea bag, and squeeze the lemon into the hot water. Add a...
We had a really bad scare here Monday night. Ryan (my 17 year old son with Marfans) called me to tell me he was in an accident. He told me he wasnt hurt but...
I ond't think that you were worrying too much at all. We have all learned that we have to be really careful with Marfan's and that we have doctor's don't...
its always ok to worry im glad he is ok ... __________________________________ Do you Yahoo!? All your favorites on one personal page – Try My Yahoo! ...
Debra, You are not worrying too much. In fact, you should keep an extra eye on his aorta for the next 6 months. I was in a car accident last October, 2003,...
I quite agree with Gretchen. Something i have learnt is go with your instincts and when it comes to doctors you have to be pushy especially when it comes to...
we are s glad that Jadens surgery went ok Sue ... Hi everyone, Just wanted to let you know that Jaden's surgery went very well. Even the doctor's where doing a...
hi I was wanting to ask anyone who has suffered a dissection if they ever suffer this pain that i do. Since the dissection I get this intense ache sometimes in...
Hello, I have been reading posts for quite some time. I rarely post but was hoping for some averages. I recently underwent hernia surgery and it was not a very...
hello sorry to hear you have had such a rough time. I wondered if you or anyone else could tell me when you have an aortic replacement what do they replace it ...
Hi Don, I am from Pennsylvania so I don't think I can help much with Dr's there but even the Dr's in my area are just now coming around to understanding A...
Hi sue I have had my aortic root and my ascending aorta done and I am told it is made of Dacron which is very pliable and soft it is made by dupont ...
Karen when you have your decending aorta replaced is it just wrapped or replaced as such Sue ... http://groups.yahoo.com/group/marfans_support_and_chat/ ... ...
hi sue As far as I know (If I remember correctly) they keep the original aorta and they wrap the artificial Dacron sleeve around it and suture it together-...
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