I am posting this to let you know that I am leaving to go on vacation for a few weeks on Friday August 6th. I will be gone two or three weeks. I will not have...
hi I wondered if those of you that have suffered a dissection can recall if they felt unwell and if so what prior to this happening. thanks very much Sue...
Hi everybody,I just joined this group tonight. I am 28 and have Marfan. I was diagnosed as a baby. My uncle and father were born with the syndrome. Both are...
My husband had a dissection last year and said that he felt fine up until it happened/ Gretchen Johnson Husband - Bill has Marfan's ... Do you Yahoo!? New and...
Firstly, forgive my english... I am so pleased to find this group. It is good to know that I am not alone! I displayed none of the Marfans Syndrome until I was...
I can't get into chat tonight my browser keeps shutting down so Bob quackenclucker is in carge if he shows up,if he doesn't it's free chat tonight. Sorry,Mike...
My name is Lisa and about a year ago i found out i had marfans. Ihad to have my haortic valve replaced and i had a big anyerism in my aorta . i was 23 years...
Welcome to the group Lisa. You will gain much from this group of wonderful, kind and helpful people! I'm sorry that you have Marfan but at least you are in...
Hi Lisa I just wanted to say hello and I know how it is to have your life change so much after finding out you have marfans. Good for you for trying to find...
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Aug 15, 2004 9:20 am
1229
HI, Just thought I would drop a little note to say hi to everyone.I look forward to getting to meet people with this illness. I have studied up on marfans but...
Hi everyone I'm sorry I haven't been able to get online for a couple of weeks so I haven't been here to do anynthing or chat with anyone, also I got a letter...
I see some of my friend are here! I just got around to getting on line for this and hope to check in often. Looks like this coming Sunday I may get to "talk"...
Hi, I am new here. I am not sure if I have Marfan Syndrome or not. I will be going to the Mayo Clinic in two weeks to find out. I do have other heart...
im new to the group and i wanted to let everyone know that i will be here for the chat sunday night to meet everyone. __________________________________ Do you...
Hi kristy, Welcome this is a nice group of people,you'll learn a lot hope to see everyone sunday lisa kristy varner <dmmdi_38@...> wrote: im new to the...
Welcome Kristy! I look forward to chatting with you! Ginger ... From: kristy varner To: marfans_support_and_chat@yahoogroups.com Sent: Wednesday, August 25,...
Hi there Carolie Marie, My name is Heidie, and I am a 25 year old marfan, who went to the Mayo Clinic when I was 11 for Open Heart surgery. I wish I could...
Hey all I am back from my vacation and what a great time we had. We flew to Texas to get a used van my mom bought for me. It ran great for us. We drove to...
Well just when I thought I knew it all about Marfans. The cardiologist as usual did not want to echo her as she had just been echoed six months ago. But I told...
Hey all I added a few new photos in Jessica's album from her make a wish trip. I will add some more later, but I got all the important ones there with her...
Heidie - Thank you for the words of comfort. I am trying hard not to worry but I still do. I have already been diagnosed with POTS and MVP, I am sure that if...
Dear Carolie Marie, I wish you all the best with your medical trials. I totally understand the anger and frustration of what the doctors put you through, and...
WELCOME BACK!!! Sounds like a great time; road trips are the greatest! want2bteacher <want2bteacher@...> wrote:Hey all I am back from my vacation and...
Hello everyone, I wanted to share with everyone what i've been feeling. The past few months my chest pains and palpitations has increased. Its been waking me...
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