Hi im a 13 year old girl who is in the process of being diagnosed with marfans syndrome i was wondering if there is someone around my age that has marfans...
Orlandofan I will pass your e-mail address on to my 17 year old daughter! orlandofan968 <orlandofan968@...> wrote: Hi im a 13 year old girl who is in...
Hi all, in light of the fact that Sunday is the 4th of July (an American holiday). There will be no Marfan chat this week, we will resume chat next Sunday July...
Jessica is my daughter with the disorder, she is 11 years old, and I will have her email you right now. Hope you find all you need here, although your parent...
Laura great to see you made it into the group. Jonathan will come and meet you prabably in the second week of the holidays. Sue ... Hi im a 13 year old girl...
We're ready you can be the first one in http://health.groups.yahoo.com/group/msacteenzone/ apply now to transferr your membership, We hope other Teens follow...
MIKE CRAIG DIDN'T PAY THE PHONE BILL AND IT GOT SHUT OFF SO I HAVE NO INTERNET. I AM ON MY DAUGHTER IN LAWS TO BE PUTER. HOPE TO BE BACK ONLINE SOON..... FAY...
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Jul 4, 2004 9:10 am
1196
Oh, yeah, THAT's not advertisement. emilyross64 <emilyross64@...> wrote:If anyone would have told me that I can get my groceries for free and eat out for...
Hey all this is your friendly reminder, that chat is on for tonight as usual. It begins at 8 pm eastern time and will run till 11:00 pm eastern time. I will be...
I'm sorry I can't set an example someone else banned her yesterday. I'm about to get ugly though and begin banning spammers on a first offense basis.I'll not...
Hi guys I finally had my cat scan and it revealled that i still have a false lumen and it's still active. They thought it would scar off but hasn't. I'd love...
What exactly is a "false lumen"? I was diagnosed at 18 with Marfans and am now 54 and I have never heard that term before. Thanks Michèle AOL Email What...
Sue.... I have a false lumen which means that the blood is going on the "wrong" side of the layer of the aorta that is dissected (torn/floating). Mine is in...
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the marfans_support_and_chat group. File...
marfans_support_and_c...
Jul 17, 2004 5:31 am
1204
CHAT Join us in chat every sunday night at 8:00(EST)7:00(CST)...
marfans_support_and_c...
Jul 18, 2004 9:06 am
1205
We will be in the chat room tonight from 8-11pm eastern time. I hope you all had a good week, as usual I am available on yahoo messanger for those who need...
I would like to know if anyone has filed an insurance claim with their medical insurance to cover dental work necessary before your open heart surgery. Our...
Hello all, we will be available for the weekly chat tonight from 8- 11pm eastern time. I hope we have a good turn out this week, last week started out slow but...
We are honored to invite you to our sexy, hot BBW, BHM community! Meet your special one among our quality BBW, BHM, FA singles! http://bbwlover.active.ws/ ...
Hi, I wanted to network with others in NYC. I really need to find some attentive doctors and a dentist. I also need someone to talk to. Thanks, Lisa...
Hi Lisa, Hang in there. Persistance will lead you to a competent doctor. I live in Western Mass. and our good doctors are all in Boston. We have some out here...
Hi My name is Monica Jacques and I live in New York City in the Bronx. Whenever you want to talk you can email me. We always need someone to talk to, someone...
hey, I live in Brewster, N.Y. about one hour north of the city....I work in the city, and all my surgeries and m.d.s are out of columbia presbyterian. Please...
I am posting this to let you know that I am leaving to go on vacation for a few weeks on Friday August 6th. I will be gone two or three weeks. I will not have...
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