hi guys does anyone have children that have problems with SVT and what treatment have they recieved. Jonathan is 11 and is having it happen quite often. He is...
Okay, for the sake of us marfans' people that are trying to keep up, could someone please tell me what SVT is? Seems like there are so many different...
Lisa ..unless I am mistaken SVT ..is supraventricular tachycardia. It is a rapid heart rate. Can cause the rate to be as high as 250 beats a minute. Sue sorry...
thanks heaps bob for that. Sorry Lisa its all new ground for me also. I just hope they are on to it enough here and arn't leaving things too long to do the...
Hi Sorry everyone,I've been out of touch for this last few days,My PC malfuncioned major and it was a miracle I picked up an old cd that had restore.exe on it...
thanks bob! i appreciate your response! lisa Bob Hobson <rhobson3@...> wrote: Lisa ..unless I am mistaken SVT ..is supraventricular tachycardia. It is a...
I have to recommend this site most highly. I too recently saw a couple of television shows for the company listed at: http://www.wrldofproducts.com I checked...
Come one, come all, time for our Sunday night chat. We are in the chat room from 8-11pm eastern time. Join us and tell us how your week has gone. If you are...
I was really far into debt. Like Most I was in Financial dispair. I could not seem to get ahead no matter how hard I tried. Untill I found this place. ...
Anyone caught spamming the message board for Marfans_Support_And_Chat may be banned I've read two messages that appear to be spam if it's repeated by the same...
I second that, I too am tired of opening up advertisements when I am looking for info that is invaluable to my sons health! Christy Crawford ... MSN 9 Dial-up...
Hi Group, I just wrote this but forgot to hit send I think so I'll try again. The best site I have seem as far as informative is www.io.com/~cortese/marfan....
I agree. Janis is a wonderful writer. I am a real admirer of hers. Yes, several of us might be over 49, if we knew how to add anymore. Sally (in her...
My youngest son told me last night that a Navy doctor had told him many years ago that he might have Marfans. I did a tiny bit of looking around, and from what...
Hi Lynn Welcome to our group. You are going in the right direction now. Find out all you can about Marfan and share this with your sons. They will have to be...
Lynn, Please encourage your son to see a cardiologist and have a complete physical. My husband is a known second generation with Marfans and two of my...
hi Lynn Like Rob says it will be the boys decision to get checked but when they do go armed with all the possible info you can find from about marfans. I found...
Hello all, sorry I am late, but me and my husband are both very sick. I am also trying to do laundry and pack two kids leaving for camp in the am. I just got...
Hello - I was recently told that I have marfans and would like to talk to some others who have it - Doctors are so in-and-out you don't know what's going on!!!...
mckluver, I do not have marfans but my family does. Feel free to contact me anytime if you have questions that I can answer. We have been dealing with known...
Hi Pam, My name is Michèle and I will be 55 in October.I was diagnosed with Marfans when I was 18,and yes some days the pain is so awful I wonder how I am...
Hi there, my name is Lisa. I live in Pensacola Florida. I was diagnosed when I was 18; I'm now 44. Marfan isn't the same for everyone. I have had MVP for...
- My son too has suffered from SVT, at the age of 9 months his rate sky rocketed up to the 200's, they even called a code blue on him(we were inpatient at the...
Thanks Christy for your reply.We dont know why Jono is having so much trouble now but wondered if puberty was something to do with it.He is now on sotolol.I...
Thank you - I was worried because from what I can tell, I'm different than everyone here! I have a lot of the same problems that you do... I'm 26 and my...
hi everyone. I have a friend who has a daughter who was recently diagnosed by a pediatrician to have marfans. She has the usual traits with height (6ft at 13)...
I didn't have any heart defects when I was diagnosed at 18 yet I fit the same physical description as your friends daughter. We also haven't exactly figured...
Our youngest daughter, who is 17, has no heart problems at this time either but we keep a constant watch on it. Marfans usually develops as you get older,...
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