Hello all and just my friendly reminder it is time again for Sunday night chat. I hope you have all had a wonderful week. The chat tonight will run from 8-11pm...
Does anyone out there that has had emergency heart surgery ( dissection)suffered any neurological damage from having been on the bypass longer than average. I...
Dr. Paul Thompson and his associates at Cardiovascular Surgeons in Orlando Florida are very good... very experianced with marfan's as well. It's not Tampa but...
hi everyone thanks mike for your reply and support. Unfortunately wednesday night Jono's heart took off and wouldn;t settle back down.It took 6 hrs to finally...
hi,been living with marfans for past number of years.Survived bentall in 2000.Have lost 2 brothers both with aortic dissections (one type a and one type...
Hi Newbie: Welcome to the group I'm sure you'll be an appreciated asset to this group it's nice to meet you I hope to see you in chat tomorrow night at...
Sorry I did not reply sooner. I am very sick this week, have not been on all week. Jessica also had her meds fixed when she reached age 11. The heart rate...
thanks Connie I will check his pulse tomorrow.Jonathans on 50mg of metoprolol a day.They decided against starting Brittany on anything after sayiing there was...
Hello This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates are available, for a...
Hello This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates are available, for a...
Hello This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates are available, for a...
Hello This company really helped me out. I almost lost my home. I am self employed and I was able to refinance. The best interest rates are available, for a...
Just wanted to say that I signed up for this group to get info on Marfan, not on how to get a mortgage! ... Do you Yahoo!? Yahoo! Movies - Buy advance tickets...
I also signed up to get info about marfans and to chat with others that have it. But the spam that we all have been getting is not the fault of the group....
That's why I don't take part to much in discussions now days, There is no such thing as a free lunch ...... well that's what YAHOO think !!! Quite a few of...
hi, new member here.understand that on wed nites you have voice chats.As i dont have a mic yet was wondering if i can listen in on the chat or is that...
Dom .. I don't know if it was ever set up to do the chat or not ..but anyone can join in ..it would be in the chat room and just jump in and type if you dont...
My name is Tracy - I have a 12 year old daughter that was just diagnosed with Marfan's. This seems to be an overwhelming syndrome based off of the research ...
hi Tracy I found out 2 years ago that I had marfans and in tern 2 of my 3 children. It is good that you may get a diagnosis now for your daughter. My children...
Hello all, it is time for our Sunday night chat. We are in the chat room from 8-11pm eastern time. If you need any assistance getting into the chat room,...
My daughter had surgery at the St Joseph's Children Hospital in Tampa to repair her pectus (funnel Chest). She seen Dr. Morrell, who performs alot of heart...
Im 20 yrs female with Marfan's Syndrome, I was diagnosed when I was about 10yrs old. Ive been having really bad chest pains and my doctor keeps telling me its...
Hey all, it is time again for Sunday night chat. I would really like to have a good rocking chat that flies by. Come one, come all, to share the experiences of...
IS ther anyone who knows of doctors that specialize in marfans in the calgary area? I have searched and havent found a single doctor. If someoen can help me...
just seeing what everyone is upto. My fiance has Marfans syndrome and was just recently diagnosed. Was wondering if anyone else had problems finding a doctor...
no i dont know anyone there. I just wanted to reply to this message saying "Go Flames"! ... IS ther anyone who knows of doctors that specialize in marfans in ...
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