Tamara, Just wondering if they are going to artificially replace the lens or use contacts? I has my surgery twenty three years ago and had a host of problems...
Hi all, Got stuck in the hospital for 4 days due to a bladder infection that wouldn't go away. I guess it was for the best due to the fact I got them to do all...
Hello, I am 35 and my son in 13.We both have Marfan and for now our big problem is lens dislocation. We live in Romania and I can not chat with you because at...
Hi Michele, What a neat story about Ashley being able to drive after all. The advances in Marfan medical care have definitely been great, but they also still...
I am probably the last person who should take part in this discussion. I have had a dislocated lens in my R eye since birth most likely. It was discovered...
Wow... that's a lot of information! I, so far, have not had any eye problems other than wearing glasses at this point. All my problems are heart related....
Hello all, it is time again for Sunday night chat. I hope we have a great chat as we did last week. It was so much fun having so many people in there. At times...
http://health.groups.yahoo.com/group/marfans_support_and_chat/chat Clik the address above and tell me if this works please. I know you have problems with...
Hi, I'm having trouble getting life insurance at the mo. I've been turned down twice and the only one that may cover me is charging a fortune compared to...
My child is 9 years old has enlarged aorta (now a slight bulge is showing on echo), MVP and now is having problems with her sight. Does anyone know about the...
Hello all, it is time for you to all come and join us in the group chat room. We are open to chat from 8-11pm eastern time. I hope you all had a good week and...
I was doing a search for more information on Marfans and came across this group, I am so glad I did- after reading afew of the posts I feel alot more...
thank you for the information. I wish you the best of luck to you and your family. God bless angel_852010 <angel_852010@...> wrote:I was doing a search...
My how your story has touched me. I am so glad you joined the group. We have a chat every Sunday night from 8-11 pm eastern time. I hope you can join a few...
Toronto is one of the best. I live in Pensacola, Florida and when I had my first surgery they referred me to either there or Birmingham Alabama (UAB). Dr....
My understanding is that some doctors may say that an aorta has healed itself but what it actually does is create a false lumen along with the original true...
I guess that is what happened, his 3rd surgery which was afew years ago was due to him tearing his aorta while at work, they repaired one tear and couldn't get...
Hi Marsha I wondered when you had your dissection causing a false lumen. What treatment have you had since and what liklihood are you to develop an anyrysm? I...
Angel, My father had a dissection nearly 8 years ago. He did not have it surgically repaired. He is still very much alive and "well." He is 59 or 60 - I...
Angel, I wasn't trying to correct you, just hoping to shed a little more light on the subject. I've heard of doctors explaining it that way. Having a tear...
Suzie and all I dissected right beside the valve in 1995 and they replaced the valve and just a couple cm of the aorta because it was emergency. That was also...
Hey all my name is Chey and i dont suffer marfans but the man i love in Alabama USA does. Im in australia and im trying to be a supportive and loving partner....
thanks Marsha Sue ... Suzie and all I dissected right beside the valve in 1995 and they replaced the valve and just a couple cm of the aorta because it was...
I'm having a problem with my levels (sure this isn't a big surprise to most of us on it.) I was hoping for some reassurance that my doctor knows what she's...
Dear Lisa.....Welcome to the wonderful world of coumadin. I had double valve replacement back in 1995. They were replaced with St Judes, so needless to say I...
Thanks Mary for responding! I had my valve replaced last month (CarboMedic Titanium Valve). What is the difference between yours (St. Judes) and mine. I...
My husband too has a St. Jude's valve & take coumadin. We have looked for a comprehensive list of foods containing Vitamin K (which is what works against the ...
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