Scott, I am so sorry for all that you've gone though over the past year, I'm so sorry you lost your mom and that it has been so horrible for you and your...
Im so sorry to hear of your loss. I was on vacation visiting family in Texas and just saw your post. Im so glad you got time with her before her passing. You...
Oh, Scott,I am so very sorry for your loss. I was there when my daddy passed away--and I am so glad I was able to spend time and let him know how much I love...
Scott I too am very very sorry for your loss. I lost my dad in Nov but I was unable to be with him when he passed. I hope that the Lord blesses you with peace....
I found out this week that I have an Adbomnal Anuerysm. I'm supposed to going to Cleveland Clinic for more testign and surgery! Keep a happy thought for me! ...
My abdominal anerisym dissected back in 2003. I experienced a lot of pain in my back and went to the hospital. Spent a week there but the dissection did not...
Hi there, Has anyone had surgery on their carotid for a dissection? If yes, what was your surgery like, recuperation time, any permanent limitations? My left...
Easiest fundraiser ever! Just place your vote and NMF who supports Marfan and all related ctd's can benefit. Most of us have so many medical bills etc. that...
... Dear Julie, i havent had this sort of surgery, but had the aortic valve replace 6 years ago, i hope all goes well for you and your upcoming surgery, hugs...
... From: Iowa Marf <iowamarf@...> Subject: [marfans_support_and_chat] Help Marfan get some funds To: marfans_support_and_chat@yahoogroups.com Date:...
The way to join in on Marfans chat is to send an IM to Marsha using yahoo messenger. iowamarf is her address for you to send that IM to. She will then send...
I would like to join the chat room, but the earlier message says to IM marsha? I have IM, but I don't know how to use it. How do I IM Marsha? I don't have her...
Hi all, lots of new members recently, a couple look like spammers and I'll try to take care of them soon. Sorry I've not been watching the board real close as...
Hi, My name is Graciela and I have my daughter Naomi with Marfan. The insurance cancelled the policy because the marfan, and I need to get health insurance for...
National Marfan Foundation New Website Content: Healthcare Coverage and SSI/SSDI The NMF is pleased to announce that two new sections have been added to our...
Graciela, You're in Texas right? What kind of insurance was she on? For the most part the US has laws that prevent this. There can be a waiting period until...
 It was Blue Shield Blue croos.  I was yesterday nicght checking your website, and I found about the pool insurance and I'm going to apply for that one. ...
Hi, I'm Jessi and I am 17 yrs old, I'm want2bteacher's daughter (the group creator). I have spinal stenosis and slight scoliosis and, I have exercises that I...
Hi Jesse, I'm not sure I know what you are asking for. You said you wanted to be a "teacher's daughter."Â What exactly does that mean? THen you say you don't...
YOU have to do what is best for YOU. Each person with marfans has a different level and combination of problems. Maybe you can go out and do light workouts...
She didn't say she wanted to be a teachers daughter, she said her mother's screen name is "want2bteacher" the creator of the group. The thing is Jesse,...
Hi Jessi-My daughter is 18 and she has Marfans too. I have several kids, 2 definately have Marfans, the others are suspected of having it.My kids also have...
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