--- In marfans_support_and_chat@yahoogroups.com, "caseyyowler" <caseyyowler@...>
wrote:
>
> --- In marfans_support_and_chat@yahoogroups.com, "vicki" <vickiribbands13@>
wrote:
> >
> > --- In marfans_support_and_chat@yahoogroups.com, "caseyyowler"
<caseyyowler@> wrote:
> > >
> > > Casey,
Marfan Syndrome is a very serious disorder......

I am very involved in the treatment of my disorder....

When you say " they did some test" makes me think you aren't taking part in
managing your care......
I feel it is extreamly important for you to know what is going on with your
case. And I keep records for myself.