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marfans_support_and_chat · Marfans Syndrome support and chat
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Hi, I'm new.   Message List  
Reply | Forward Message #4642 of 6694 |
Hi, I'm new to the marfans chat room. I've never entered any chat
room before so I'm don't really know how this works, but I thought I'd
give it a try. I have marfan syndrome and am interested in
communicating with other people who have the disease. I have always
wanted to be able to talk with someone else who has it, but I don't
know anyone else. Nor do I know just what to expect by entering a
chat room.




Sat Jul 7, 2007 2:54 am

pollydrtn
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Message #4642 of 6694 |
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Hi, I'm new to the marfans chat room. I've never entered any chat room before so I'm don't really know how this works, but I thought I'd give it a try. I...
pollydrtn
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Jul 7, 2007
2:54 am

Hi Polly, (I'm guessing that's your name) Hang in there, all of the people on the forum either have Marfan or know someone that does have it. So you will find...
Lee Parks
wt_lparks
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Jul 8, 2007
4:42 pm

Hello and welcome, Newbie (Polly?). I also had never been a part of a chat room, but it definitely made me feel like I was a part of a safe and supportive...
Shannon Healton
dalesgirl_01
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Jul 8, 2007
5:37 pm

I'm afraid I don't know just how this chat room thing works, but I'm sure I'll learn. I am 63 and was diagnosed with marfan when I was 3. I have had numerous...
pollydrtn
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Jul 9, 2007
2:11 am

Hi Polly, I'm not so great with the chatroom thing either but I'm good on the posting boards...like this. Thanks for telling us about who you are and your...
Lee Parks
wt_lparks
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Jul 13, 2007
10:43 pm

I'll be happy to share any information or experiences that I can. When I was first diagnosed very little was known about marfan. I believe my mother had it as...
pollydrtn
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Jul 14, 2007
2:50 am

Hello all, After my last echo and ct scan, my cardiologist is recommending that I go ahead and have my aorta and mitro valve replaced. I am meeting with a...
tabitha spacht
underfire118
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Jul 17, 2007
10:50 pm

Hi, Daniel had his ascending aorta and valve replaced approx 5 years ago. He was 14 at the time and reasonably healthy. He was out of hospital in 5 days and...
sharon stretton
shaz037
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Jul 18, 2007
1:20 am

Hello, I had my aorta replaced when I was 35, I was in somewhat good health. I was able to get around pretty well and was bass fishing, (fairly strenuous)after...
Donnie Spears
dps02
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Jul 19, 2007
3:02 am
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