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Hi, I have tried several times to unscribe to your group, could you please take me off your mailing list, it would be greatly appreciated.
Sherry Heldt
From: marfans_support_and_chat@yahoogroups.com
Reply-To: "No Reply"<notify-dg-marfans_support_and_chat@yahoogroups.com>
To:
Subject: [marfans_support_and_chat] Digest Number 1418
Date: 2 Jul 2007 10:05:36 -0000
Messages In This Digest (4 Messages)
- 1a.
- Marfan Chat Time, 7/1/2007, 8:00 pm From: marfans_support_and_chat@yahoogroups.com
- 1b.
- Marfan Chat Time, 7/1/2007, 8:00 pm From: marfans_support_and_chat@yahoogroups.com
- 2a.
- Re: Newby From: adil khan
- 3.
- marfan chat time, 7/2/2007, 4:00 pm From: marfans_support_and_chat@yahoogroups.com
Messages
- 1a.
Marfan Chat Time, 7/1/2007, 8:00 pm
Posted by: "marfans_support_and_chat@yahoogroups.com" marfans_support_and_chat@yahoogroups.com
Sun Jul 1, 2007 4:57 am (PST)
Reminder from: marfans_support_and_chat Yahoo! Group
http://groups.yahoo.com/ group/marfans_ support_and_ chat/cal
Marfan Chat Time
Sunday July 1, 2007
8:00 pm - 4:00 am
(This event repeats every week.)
(The next reminder for this event will be sent in 11 hours, 32 minutes.)
Location: Yahoo instant messenger - iowamarf or veldaroyce
Notes:
General chat
All Rights Reserved
Copyright © 2007
Yahoo! Inc.
http://www.yahoo.com
Privacy Policy:
http://privacy.yahoo.com/ privacy/us
Terms of Service:
http://docs.yahoo.com/ info/terms/ - 1b.
Marfan Chat Time, 7/1/2007, 8:00 pm
Posted by: "marfans_support_and_chat@yahoogroups.com" marfans_support_and_chat@yahoogroups.com
Sun Jul 1, 2007 4:26 pm (PST)
Reminder from: marfans_support_and_chat Yahoo! Group
http://groups.yahoo.com/ group/marfans_ support_and_ chat/cal
Marfan Chat Time
Sunday July 1, 2007
8:00 pm - 4:00 am
(This event repeats every week.)
Location: Yahoo instant messenger - iowamarf or veldaroyce
Notes:
General chat
All Rights Reserved
Copyright © 2007
Yahoo! Inc.
http://www.yahoo.com
Privacy Policy:
http://privacy.yahoo.com/ privacy/us
Terms of Service:
http://docs.yahoo.com/ info/terms/
- 2a.
Re: Newby
Posted by: "adil khan" lapiz_khan@... lapiz_khan
Sun Jul 1, 2007 10:48 am (PST)
Thanks Debbie for your email.Apologise for the lateness of my reply,new to computers so still finding my feet! I am 34,married and have two wonderful kids,aged 7 yrs and 6 yrs. We all live in the Northwest of England near Manchester.I fit the perfect profile of the average Marfan man, 6 ft 3',slim,long limbs,etc etc.I have known about my condition for about 20 years, after suffering a spontaneous pnuemathorax at 19.Initial shock soon subsided and I carried on my life as before, bingeing,smoking,partying and doing everything to excess.Now that I have stopped that lifestyle, I look back and think I was in denial about having an illness.Walked out from another job last Thursday,confused and scared with life.I despair for my family as I cannot give them the level of support as I should.Mentally I am shot to pieces after suffering physical and psychological abuse as a child.Physically I am weak,a bag of bones weighing 70 kg and over 6 foot tall,my lungs battered with over twenty
years of smoking cigarettes,pot and much worse.What do I do?Am I being a hypochondriac?
Debbie Clark <dclark150@sbcglobal.net > wrote: You are in the right place for the help and fellowship that people who are affected by Marfans, either as having it, being a parent, spouse or caregiver, to come for a wealth of information. I think we have all been overwhelmed when we hear that someone we love and care for has something wrong with them that is hard to understand and fathom! Marfans has so many different manifestations that do or don't show up in each person who has Marfans! One of my best sorces of information was the information book that I received from the MFS. It broke down into lay terms the things that the doctors were trying to tell us that they didn't even understand!
Back in 1976, when we first became aware of Marfans, there was very little information about it. Even today there are a lot of physicians who know very little if anything about this condition. We have become a lot of doctors teachers on this subject.
Depending on where you are in the world there are several medical centers where you can go to that are very familiar with Marfans. Let us know where you are and maybe we can point you in the right direction, if not we (everyone in this group) will listen to your thoughts and feelings and try to give you the tools to deal with what is going on.
Please feel free to contact me anytime, I am the mother of 2 children (adults now) with Marfans, a wife of 1 and the aunt and sister-in-law of several more!
Debbie C.
dclark150@sbcglobal.net
Krista Orozco <koma028@yahoo.com > wrote:
Well, where do I begin? I am new to all of this and
although somewhat of a diagnosis, but not really, was
made in March, it is only know that denial has taken a
background to the need for knowledge and support. I
apologize if the post is long but perhaps three months
of ignoring the situation has caused an eruption
tonight.
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- 3.
marfan chat time, 7/2/2007, 4:00 pm
Posted by: "marfans_support_and_chat@yahoogroups.com" marfans_support_and_chat@yahoogroups.com
Mon Jul 2, 2007 12:57 am (PST)
Reminder from: marfans_support_and_chat Yahoo! Group
http://groups.yahoo.com/ group/marfans_ support_and_ chat/cal
marfan chat time
Monday July 2, 2007
4:00 pm - 7:00 pm
(This event repeats every week.)
(The next reminder for this event will be sent in 11 hours, 32 minutes.)
Location: Yahoo Instant messenger - iowamarf
Notes:
General chat
All Rights Reserved
Copyright © 2007
Yahoo! Inc.
http://www.yahoo.com
Privacy Policy:
http://privacy.yahoo.com/ privacy/us
Terms of Service:
http://docs.yahoo.com/ info/terms/ SPONSORED LINKSNeed to Reply?Click one of the "Reply" links to respond to a specific message in the Daily Digest.
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