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Re: coumadin   Message List  
Reply | Forward Message #4087 of 6693 |
Re: [marfans_support_and_chat] coumadin

Hi Tabitha,
I think coumadin makes any procedure more difficult.  I can not give you advice about heart surgery.  What you need to consider is the rate of growth of your aorta within the past few years and your family history of dissection.  I am not sure what your cardiologist or surgeon has told you.  If surgery is a must, then you must have it done for your health and the health of your future.  That is the first decision you have to make...everything else you will deal with in time.
 
As far as children go there will be much to consider regarding your health but deal with that at that time.  First things first.  I would love to talk to you about the issues of children when you are interested.  In fact, I am starting to write a book about that decision and I hope to get it published.  I was left in the cold two years ago when I was deciding about whether to birth my own child or adopt.  It was a hard place to be and there were little resources and I couldn't find anyone really to talk to. 
 
Good luck to you in your deicion, but remember first things first...if you need the surgery the sooner the better.  You can always take a semester or quarter off.  Health comes first!
 
Take care,
Kim

tabitha spacht <underfire118@...> wrote:
Thank you for sharing. I have recently been faced with
having to make the choice on whether to go ahead an
get my entire aorta replaced immediately or to wait.
The issue I am facing is that I am currently in
college, and there are not many times during the year
when I have six weeks where I can be operated on. I
was thinking of going ahead and pushing for the
surgery because I do not want to be in the middle of
my last year of college and have to the surgery.

The only negative I have been told about having the
surgery now is that it will be more difficult to have
children because of the coumadin. They did not tell me
about the side effects of the drugs. This definitely
gives me something more to consider.


--- Heather <hethbean@yahoo.com> wrote:

> I've been on coumadin for 22 years....it is very
> important to have
> regular coumadin (INR) checks,they always told me
> that and I said to
> my self"yea...yea...yea"
> However;
>
> as the course of everyday life it is normal for
> there to be
> microscopic tears in the capillaries in ones body
>
> I have found that through haveing an active
> lifestyle that if my
> blood is too thin that this can exasparate the small
> bleed and make
> it become a significant bleeding problem
>
> I have had intra-muscular bleeds many times,the pain
> is unbearable
> Everytime, I have to go to the ER,to make sure my
> dissection has not
> torn,and get an INR in the ER,sometimes I have to
> have a transfusion
> or a reversal(vitamin K treatment)
>
> Everytime I have an intramusclular bleed I have
> nerve damage and the
> permanent loss of function to the muscle involved.
>
> They make a INR home testing machine (its just like
> the home
> diabetes test machine) everyone on coumadin should
> have
> one,sometimes insurence will cover the cost
>
>
>

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Tue Jan 16, 2007 5:19 pm

smansi8
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Message #4087 of 6693 |
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Thank you for sharing. I have recently been faced with having to make the choice on whether to go ahead an get my entire aorta replaced immediately or to wait....
tabitha spacht
underfire118
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Jan 16, 2007
7:33 am

Hi Tabitha, I can so appreciate the thoughts running through your mind right now. Some people do not have to be on coumadin for their entire life (such as...
legendheir
sky_carter_2003
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Jan 16, 2007
7:43 am

agrees with talking to your doctor...alot.....about the wonderful world of coumidan.. Not to make things sound even scarier for you, but speaking as a person...
mary brozik
merryreader
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Jan 16, 2007
12:00 pm

Hi Tabitha, I think coumadin makes any procedure more difficult. I can not give you advice about heart surgery. What you need to consider is the rate of...
KIMBERLY MANSI
smansi8
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Jan 16, 2007
5:20 pm

Keep me posted on your book. I, the husband and father in our family, have Marfans and my wife does not. We have had five children, ages 5 to 13 (as of next...
Lee Parks
wt_lparks
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Jan 22, 2007
5:46 am

My nephew had his valve replaced during the summer of his senior year of college. By the time school started in the fall he was ready and able to carry his...
Debbie Clark
debbiec50175
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Jan 16, 2007
7:36 pm
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