--- In marfans_support_and_chat@yahoogroups.com, "legz"
<evieshuman28@...> wrote:
>
> --- In marfans_support_and_chat@yahoogroups.com, "esso2k5"
> <esso2k5@> wrote:
> >
> > --- In marfans_support_and_chat@yahoogroups.com, Suzie Glassey
> > <soozeege@> wrote:
> > >
> > > Havent heard of soft braces but Brittany has worn a boston brace for
> > 2 yrs and it hasnt helped. Surgery next year. Her brother is 14 and
> > his improved with growth.
> > > Sue
> > >
> > > KIMBERLY MANSI <kmansi@> wrote:
> > > It probably is important that you get her involved in a
> > low impact exercise program. A very good exercise program for us is
> > non-competitive water exercises, swimming, water walking or jogging
> > and a good stretching program and light weights outside of the water.
> > As far as the back brace you can find almost anything online.
> > >
> > > Donna <dcbohlar@> wrote: Has anyone heard about the "soft
> > back brace" that is adjustable?? I
> > > caught a glimpse of it on TV, but I'm unable to find anything on
the
> > > net..I know it probably has a different name...My daughter
(Jemma) is
> > > 12 and has Marfan's...She has a slight case of scoliosis..It had
> > > actually improved at one time...but I feel it is getting worse now
> > > that they have ban her from all of her sports...
> > >
> > > Thanks....God Bless you all...I have gained so much from this site!!
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > >
> > > Send instant messages to your online friends
> > http://au.messenger.yahoo.com
> > >
> > Check out this tv news report on scoliosis threatment...
> > You might have seen this..
> >
> > http://www.nbc4.tv/video/4656127/index.html
> > God Bless.
> >
> just wanted to share my experience with the boston brace....i
> fractured my sacrum two years ago...after months of agony the dr told
> me to try the boston brace. 2000 dollars later i was wearing this
> hard piece of plastic that if anything made my back and chest hurt
> more than ever. I gave it a fair chance i wore it for about a month.
> Finally i told the dr i wasnt going to wear it anymore because of the
> discomfort. he put me in physical therapy(what a novel idea), the PT
> helped more than any drug or brace and my fracture soon healed. So
> now i have this expensive brace sitting in my closet collecting
> dust...sure wish i wouldve tried other treatment options before
> shelling out a lot of cash for nothing:)
> kelley
>
Back Braces???
Here's some info.

www.spinecorporation.com
And here's the video
http://www.nbc4.tv/video/4656127/index.html
You might need to copy and paste.

Regards,

Esso