--- In marfans_support_and_chat@yahoogroups.com, "esso2k5"
<esso2k5@...> wrote:
>
> --- In marfans_support_and_chat@yahoogroups.com, Suzie Glassey
> <soozeege@> wrote:
> >
> > Havent heard of soft braces but Brittany has worn a boston brace for
> 2 yrs and it hasnt helped. Surgery next year. Her brother is 14 and
> his improved with growth.
> > Sue
> >
> > KIMBERLY MANSI <kmansi@> wrote:
> > It probably is important that you get her involved in a
> low impact exercise program. A very good exercise program for us is
> non-competitive water exercises, swimming, water walking or jogging
> and a good stretching program and light weights outside of the water.
> As far as the back brace you can find almost anything online.
> >
> > Donna <dcbohlar@> wrote: Has anyone heard about the "soft
> back brace" that is adjustable?? I
> > caught a glimpse of it on TV, but I'm unable to find anything on the
> > net..I know it probably has a different name...My daughter (Jemma) is
> > 12 and has Marfan's...She has a slight case of scoliosis..It had
> > actually improved at one time...but I feel it is getting worse now
> > that they have ban her from all of her sports...
> >
> > Thanks....God Bless you all...I have gained so much from this site!!
> >
> >
> >
> >
> >
> >
> >
> >
> > Send instant messages to your online friends
> http://au.messenger.yahoo.com
> >
> Check out this tv news report on scoliosis threatment...
> You might have seen this..
>
> http://www.nbc4.tv/video/4656127/index.html
> God Bless.
>
just wanted to share my experience with the boston brace....i
fractured my sacrum two years ago...after months of agony the dr told
me to try the boston brace. 2000 dollars later i was wearing this
hard piece of plastic that if anything made my back and chest hurt
more than ever. I gave it a fair chance i wore it for about a month.
Finally i told the dr i wasnt going to wear it anymore because of the
discomfort. he put me in physical therapy(what a novel idea), the PT
helped more than any drug or brace and my fracture soon healed. So
now i have this expensive brace sitting in my closet collecting
dust...sure wish i wouldve tried other treatment options before
shelling out a lot of cash for nothing:)
kelley