--- In marfans_support_and_chat@yahoogroups.com, Suzie Glassey
<soozeege@...> wrote:
>
> Havent heard of soft braces but Brittany has worn a boston brace for
2 yrs and it hasnt helped. Surgery next year. Her brother is 14 and
his improved with growth.
> Sue
>
> KIMBERLY MANSI <kmansi@...> wrote:
> It probably is important that you get her involved in a
low impact exercise program. A very good exercise program for us is
non-competitive water exercises, swimming, water walking or jogging
and a good stretching program and light weights outside of the water.
As far as the back brace you can find almost anything online.
>
> Donna <dcbohlar@...> wrote: Has anyone heard about the "soft
back brace" that is adjustable?? I
> caught a glimpse of it on TV, but I'm unable to find anything on the
> net..I know it probably has a different name...My daughter (Jemma) is
> 12 and has Marfan's...She has a slight case of scoliosis..It had
> actually improved at one time...but I feel it is getting worse now
> that they have ban her from all of her sports...
>
> Thanks....God Bless you all...I have gained so much from this site!!
>
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> Send instant messages to your online friends
http://au.messenger.yahoo.com
>
Check out this tv news report on scoliosis threatment...
You might have seen this..

http://www.nbc4.tv/video/4656127/index.html
God Bless.