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Friend's son has been told he has Marfan's   Message List  
Reply | Forward Message #4069 of 6693 |
Group and chat

Hopefully the messages from the last 6 months or so will reappear - I'm trying to find answers.  If anyone knows more about Yahoo groups and has an idea I'll take it!  Just a sub here :) 

Until that point just a reminder we have Sunday, Wednesday, and Friday evening (in US) chats  8-? eastern time.  We also are trying to have a chat Tuesdays 2-5 pm.  Get an invite by IMing iowamarf or veldaroyce on Yahoo messenger.  If there are substitutes they will be posted and anyone is welcome to post their IM and start a chat at anytime!  If you don't know how email me at iowamarf@... or post.

 



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Fri Jan 12, 2007 11:59 pm

iowamarf
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Message #4069 of 6693 |
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Hello all, my friend's 16 year old son has been told he has Marphan's. We live in Pensacola, FL and she is having trouble finding good Dr.'s and support...
Christy
crazy1csd
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Jan 12, 2007
6:54 am

Tell her to call the Marfans Foundation they should be able to recommend someone in her area, if no one is in her area, maybe she could make a once a year road...
KIMBERLY MANSI
smansi8
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Jan 12, 2007
10:10 am

1-800-8-Marfan. they will answer ANY questions they might have. Great organization from the little exposure I have had thus far. Request the packets of...
scott allen
saazgr81
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Jan 12, 2007
6:02 pm

Hopefully the messages from the last 6 months or so will reappear - I'm trying to find answers. If anyone knows more about Yahoo groups and has an idea I'll...
Iowa Marf
iowamarf
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Jan 13, 2007
12:03 am
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