It probably is important that you get her involved in a low impact exercise program.  A very good exercise program for us is non-competitive water exercises, swimming, water walking or jogging and a good stretching program and light weights outside of the water.  As far as the back brace you can find almost anything online.

Donna <dcbohlar@yahoo.com> wrote:

Has anyone heard about the "soft back brace" that is adjustable?? I
caught a glimpse of it on TV, but I'm unable to find anything on the
net..I know it probably has a different name...My daughter (Jemma) is
12 and has Marfan's...She has a slight case of scoliosis..It had
actually improved at one time...but I feel it is getting worse now
that they have ban her from all of her sports...

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