Sorry to hear that your daughter is getting worse. As far as the brace
goes am not much of a tv watcher but I know for a fact that you can go
to some pharmacies and or health supply stores and purchase things like
back braces without perscription. I have done it for a soft neck
brace. They have all sorts of braces and gagdets to help people who
have disabilites to do everyday things. Take Care.
Mary
-- In marfans_support_and_chat@yahoogroups.com, "Donna" <dcbohlar@...>
wrote:
>
> Has anyone heard about the "soft back brace" that is adjustable?? I
> caught a glimpse of it on TV, but I'm unable to find anything on the
> net..I know it probably has a different name...My daughter (Jemma)
is
> 12 and has Marfan's...She has a slight case of scoliosis..It had
> actually improved at one time...but I feel it is getting worse now
> that they have ban her from all of her sports...
>
> Thanks....God Bless you all...I have gained so much from this site!!
>