We're still there if you want to come!!

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From: "Donna" <dcbohlar@...>
Reply-To: marfans_support_and_chat@yahoogroups.com
To: marfans_support_and_chat@yahoogroups.com
Subject: [marfans_support_and_chat] Re: jUST FOUND OUT YESTERDAY THAT MY 11 YR OLD HAS mARFANS SYNDROME..
Date: Mon, 02 Jan 2006 03:42:58 -0000

Thanks so much for the support..I missed the chat today..but I will
make the next one..I feel so lucky to have found this site..I am
headed to bed for now, but i do have some questions I want to ask
tomorrow..when I am rested..long weekend..
Donna




--- In marfans_support_and_chat@yahoogroups.com, Debbie Clark
<dclark150@s...> wrote:
>
> Donna,
>   You have found a great group to help you with all sorts of
information about Marfans.  Yes, Marfans is a puzzling mystery that
affects each person a little differently from the others so don't
expect your daughter to necessarily have the same problems as mine
or the next person. I have an 18 year old daughter and a 28 year old
son with Marfans as well as my husband and other members of his
family.  I would be more than happy to talk to you either through
private e-mail or on the phone if you like.  Sometimes this is all
just a little over-whelming.  Also we have a Sunday evening chat
group that is a lot of fun and full of information.  We may not
always be talking about Marfans but we are always ready to change
the subject and answer any questions that we can for anyone.  We all
have different perspectives on it.
>   Debbie Clark
>   dclark150@s...
>
> Donna <dcbohlar@y...> wrote:
>   Just looking for all the information I can...We found out
yesterday
> that our 11 yr old daughter has Marfans ..    
> ---------------------------------
>

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