----- Original Message -----

From: gidget leach

To: marfans_support_and_chat@yahoogroups.com

Sent: Saturday, July 02, 2005 3:02 PM

Subject: Re: [marfans_support_and_chat] To have or not to have eye surgery continued....

meghan will be having the surgery in august she is
legally blind in one eye and almost in the other they
sayd this surgery will get them to see almost perfect

--- want2bteacher <want2bteacher@...> wrote:

> First of all, thank you to all who answered my post.
> I can't tell
> you
> how hard this decision has been for us and how
> greatly you have
> helped
> us to fully weigh our options.
>
> Jessica is only seeing through 2/3 of her lens. It
> is detached so
> far,
> that 1/3 of her undialated pupil does not see
> through the lens
> anymore.
> I am afraid for her the drops would only worse this
> issue as they
> would
> dialate her pupils and more of her eye would not see
> through lens.
> Also
> it is of a nature... that after reading one email I
> was sent about
> the
> lens dislocating into a poor section of the eye and
> then no one was
> able to do surgery due to the lens position... we
> feel best to go
> ahead
> with the surgery. I took the girls to the drive-in
> last night. We
> saw war
> of the worlds and as it is a dark by nature movie,
> and even though
> we
> were in the front row. I had to explain what was
> happening to
> Jessica.
> When we go to restaurants and they have a menu board
> listed on the
> wall,
> I have to read the entire menu to her for her to
> chose her meal. She
> is
> affected in so many other ways visually. We all know
> the vision will
> not get any better as bad as her right eye is
> detached. We coul
>  d only
>  hope it would not get worse. Jessica can't deal
> well with the
> vision
> as it is now. Yes going blind will be worse than it
> is now, as far
> as I
> see it. But with the odds of retinal detachment
> being 3% for the few
> months after surgery then 5% over her lifetime, we
> have to move on
> and
> hope she will get the help she needs and if the
> retinas detach that
> she
> is able to get surgery to fix that as well. It is
> minimal though a
> weighing issue in the desicion for surgery. I can
> only hope she will
> see
> clearer than ever as some of you have reported. No
> one has told us
> that by
> waiting even a year... things will be better in
> anyway. The odds
> will
> still be there and so we have decided to try to do
> what we can to
> help
> her with the visual difficulties.
>
> Also I believe there is power in prayer. I only want
> what God's will
> is
> for her. So I have left it all in His hands to lead
> us where he
> wants
> to and to take care of her the way He wishes. The
> church has all
> anointed her with oil and prayer as a whole last
> Sunday. And any
> doubt I have
> I have to let go of now to let Him fully resolve
> this issue. No
> matter
> what my faith will remain strong and we will move
> forward in Him.
>
> God bless!!
>
> Connie aka want2bteacher
>
>
>
>


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