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indented pectus on females   Message List  
Reply | Forward Message #1989 of 6698 |
Re: [marfans_support_and_chat] Re: indented pectus on females

At severe risk of repeating myself possibly, I'd like to say that having pectus excavatum had a big negative impact on me growing up.  But... at age 18 when inquiring to have it fixed and get implants.. that was when I was told I had marfan syndrome.  My parents and I had never heard of marfan syndrome.  Of course the news was not welcomed it was a relief somehow to know why I had this chest wall problem  ( I still can't refer to is as "a deformity."...  that should tell ya something... <smile>  Anyway.... I guess i'm saying I'm thankful for it.  Othewise I could have very well died at 35 not knowing to look for that anuerysm I had then.   Amazing how things work themselves out sometimes.     I still have it of course and with two new scars over and around it from heart surgerys.  I just recently got a new smaller scar from implanting my new pacemaker.  My chest is no where near normal but I've grown very accustomed to it.  I've long given up the anger and resentment of having it.  However, I was 26 before I went out in a bathing suit without any padding or tshirts to hide my chest.  I finally just got over it.  Every once in a while I wonder what it would have been like.... then stop just as fast.  I just try to be thankful I am as healthy as I am... it could be worse.    My daughter was born with a normal chest and I admit I was soooo happy when she got past her 2nd bday with nothing protruding out (my parents said mine developed over the first couple of years of life.)  She has seen my chest many times over the years (she's 13 now) and it helps her get over not having a larger bosom!  I'd be happy to answer any questions you might have..... write on or off list! 
 
lisa inpensacola 


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Sat May 7, 2005 5:27 pm

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Message #1989 of 6698 |
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Hello everyone, I have some questions for you females out there with Marfans. I am married to a 25 year male with Marfans and we have 3 children together well...
AMY JOHNSTON
amosph123
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May 4, 2005
3:42 pm

Hi Amy, I can't claim to be a female, but I can offer you this piece of advise. I know a woman who has Marfans who was very concerned about the appearence of...
tall_by_nature
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May 4, 2005
11:31 pm

Thank you I really appreciate the advice, every little bit makes me feel better about it. Amy tall_by_nature <tall_by_nature@...> wrote: Hi Amy, I can't...
AMY JOHNSTON
amosph123
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May 5, 2005
12:23 am

Thank you I really appreciate the advice, every little bit makes me feel better about it. Amy tall_by_nature <tall_by_nature@...> wrote: Hi Amy, I can't...
AMY JOHNSTON
amosph123
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May 5, 2005
12:23 am

Hi I had a severe pectus and had it corrected at age 12 the old barbaric way where they broke the sternum and placed a bar underneath it for some time....
Suzie Glassey
soozeege
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May 5, 2005
1:46 am

Sue, it does help incredible. My husband also has marfans and his pectus is very noticable and he said it was very hard with all the questions and looks and...
AMY JOHNSTON
amosph123
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May 5, 2005
1:51 pm

Hello Amy, I am also a 25 year old "female" with marfans, and I can tell you once your daughter gets to the "age" where looks matter for dating, she will be...
Heidie Walker
heidieluiah1
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May 7, 2005
6:55 am

I have a 17 (almost 18) year old daughter with Marfans. She is a beautiful, articulate young lady, and this isn't only my thoughts a lot of people have said...
Debbie Clark
debbiec50175
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May 7, 2005
3:46 pm

I'd love to know how to get rid of the droopy look! Of course at age 45, it's going to be a challenge! lisa in pensacola ...
Lisa Harrell
oceantrzr1
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May 7, 2005
5:49 pm

At severe risk of repeating myself possibly, I'd like to say that having pectus excavatum had a big negative impact on me growing up. But... at age 18 when...
Lisa Harrell
oceantrzr1
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May 7, 2005
5:27 pm

Amy, I agree with Heidie, kids will tease her horribly. I know I was. I know my self-esteem was horrible, so do whatever it takes to ensure she has great...
V Michiell Anderson
michiell337
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May 9, 2005
3:06 am

Hi, When I ws in my teens I use to worry about it and attracting boys. It was horrible. I talked to the people at AI Dupont and since my chest in flatter on...
bdreamin83
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Jun 12, 2005
2:57 am

-im a female with marfans and i got one daughter with and we arent sure yet but i sure the she has it -- In marfans_support_and_chat@yahoogroups.com, AMY...
thunder05654
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May 24, 2005
6:55 pm
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