marfans_support_and_chat : Message: Close to a cure

marfans_support_and_chat · Marfans Syndrome support and chat

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Message #1562 of 6695 |

Has anyone heard this? My moms doctor told her today that they are very close to finding a cure for marfans. They said that in the next few years there will be a cure. They found that the cause is a missing enzyme. And all that will be needed to cure it is to take a pill once a day to get the enzyme in our bodies. Anyone heard of this?

Tue Jan 4, 2005 3:40 am

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"Ken" <bufbandit@...>

spruchk

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Message #1562 of 6695 |

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Has anyone heard this? My moms doctor told her today that they are very close to finding a cure for marfans. They said that in the next few years there will...	Ken spruchk	Jan 4, 2005 3:40 am
never heard of that but that would not take care of the dislotacited lens maybe the heart but not the eyes ... __________________________________ Do you...	gidget leach rdrose4you	Jan 4, 2005 3:43 am
Well my mother asked about the eyes. The doc said no it wont fix the dislocations but since the tissues in the eyes will be normal again, its likely surgery...	Ken spruchk	Jan 4, 2005 3:51 pm
Hadn't heard about that. I will be interested in what they find out. Hmmmm. Debbie Ken <bufbandit@...> wrote: Has anyone heard this? My moms doctor...	Debbie Clark debbiec50175	Jan 4, 2005 9:45 am
No I have not heard a thing about it. I am a member of the Marfans list and I am sure they would discuss something like that on the list! Hmmm I am also...	want2bteacher	Jan 4, 2005 2:51 pm
Strange. The doctor that told us this was a Dr. Reidi. He is an eye surgeon in the Buffalo NY area. He claims that he is working with the top researchers...	Ken spruchk	Jan 4, 2005 3:54 pm
Hello everyone, i do not usually post, but was intrigued by this one. My son is in Johns Hopkins as we speak, he just got out of surgery a couple of hours ago....	christy crawford cadensmommy00	Jan 4, 2005 6:24 pm
I believe what you are talking about is what was discussed in the last NMF Connective Issues, where Dr. Hal Dietz discussed the research being done with the...	TallA@... tallakrcj	Jan 4, 2005 6:25 pm
Interesting. I have been on losartan for at least a couple of years. At the time I was put on it, I was told I would probably last a couple of months at the...	Sally stomson98003	Jan 4, 2005 7:23 pm
As Dr. Dietz states, this drug is not to fix problems that already exist, such as valves that are severe and roots that are too dialated. This is to slow the...	christy crawford cadensmommy00	Jan 5, 2005 1:45 am

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