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marfans_support_and_chat · Marfans Syndrome support and chat
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Group Information

  • Members: 487
  • Category: Marfan Syndrome
  • Founded: Mar 25, 2002
  • Language: English
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Activity within 7 days:

32 New Messages - New Questions

Description

This site is to help all those who are afflicted with Marfan Syndrome, or are a family member of someone who is afflicted with Marfans syndrome. It should be used to help keep each other informed on the new areas of progress being made through research and technology. Let us help each other through the rough spots of having the disorder. This group is a wonderful caring bunch of individuals. We meet on Monday for day chats from 4-??pm eastern time and on Sunday(7pm), Wednesday and Friday for night chat from 8-??pm eastern time. We hope to see you there soon!

Most Recent Messages

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Marfan chat time, 5/16/2008, 8:00 pm
Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan chat time Friday May 16, 2008 8:00 pm -
Posted - Fri May 16, 2008 11:25 pm
 marfans_support_and_c...
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Marfan chat time, 5/16/2008, 8:00 pm
Reminder from: marfans_support_and_chat Yahoo! Group http://groups.yahoo.com/group/marfans_support_and_chat/cal Marfan chat time Friday May 16, 2008 8:00 pm -
Posted - Fri May 16, 2008 11:57 am
 marfans_support_and_c...
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Re: Dallas
Vickie, Thanks for your support. yes I agree that the slow heart rate causes the light headed feeling and the rest. His heart rate is in the low 50's. We don't
Posted - Fri May 16, 2008 8:22 am
 Celeste
little_18_80
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Re: Dallas
HI CELESTE, BOY THAT SOUNDS LIKE MY SON. HE WILL BE 11 IN JUNE, AND IS WEARING A 8 IN MENS SHOES. HE HAS WHAT SEEMS TO BE ALMOST ALL OF THE MARFAN SYMPTOMS
Posted - Fri May 16, 2008 2:05 am
 Vickie Joyner
phat_emt
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Geneticist and Pediatric Cardiologist in New York
Any family that lives in the tri-state area and would like to see a geneticist and pediatric cardiologist at Mount Sinai I can help making an appointment. As
Posted - Thu May 15, 2008 8:52 pm
 gdmdny
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2008 74 80 88 94 138
2007 167 105 152 92 74 56 100 71 86 58 91 166
2006 94 165 103 83 141 190 107 100 40 70 128 161
2005 122 105 112 78 41 92 101 102 59 95 92 50
2004 36 55 52 37 34 41 28 40 33 56 90 116
2003 72 55 58 60 58 75 45 43 22 51 89 45
2002 42 29 36 55 28 24 44
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