marfans_support_and_chat : Marfans Syndrome support and chat

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This site is to help all those who are afflicted with Marfan Syndrome, or are a family member of someone who is afflicted with Marfan syndrome. It should be used to help keep each other informed on the new areas of progress being made through research and technology. Let us help each other through the rough spots of having the disorder. This group is a wonderful caring bunch of individuals. We meet Sunday (7pm?), Wednesday and Friday for night chat from 8-?? pm eastern time. Other chats added as desired, including kid and teen supervised chats. We hope to see you there soon!

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Re: Velda oh Velda im so sorry for your loss and health worries my thoughts are with you at this sad time xx Posted - Fri May 24, 2013 10:29 am	vickisticki1 Send Email
Re: Eyes - Lori and Vicki in England hi i had this lens put in my right eye in 2008 but sadly its come away again, it didnt give me great vision to drive but at last i could see my kids face with Posted - Fri May 24, 2013 10:27 am	vickisticki1 Send Email
Re: Eyes - Lori and Vicki in England My response is geared toward Lauara (Lori) and Vicki in England. I am 57 and I have Marfan. I have 5 children and two of them have it for sure. I was legally Posted - Fri May 24, 2013 4:59 am	Lee Parks wt_lparks Send Email
Re: advice and help please dalton447@... Sent from my U.S. Cellular® smartphone ... dalton447@... Sent from my U.S. Cellular� smartphone lori rolder <laurar121@...> Posted - Fri May 24, 2013 4:40 am	Vickie Whaley phat_emt Send Email
Re: advice and help please Hello, My name is Laura and I am 44. I have had many problems with both my eyes. My lenses were both so far dislocated since birth that i never used to see Posted - Thu May 23, 2013 1:30 pm	lori rolder laurar121_38 Send Email
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Message History

	Jan	Feb	Mar	Apr	May	Jun	Jul	Aug	Sep	Oct	Nov	Dec
2013	4	2	2	1	6
2012	11	1	1			17		11	1	2		32
2011	6	15	8	30	3			5	8	8	12	14
2010	14	10	18	6	57	6	12	21	28	58	9	24
2009	58	90	61	74	57	53	46	33	10	12	8	6
2008	74	80	88	94	156	58	83	49	59	142	58	51
2007	167	105	152	92	74	56	100	71	86	58	91	166
2006	94	165	103	83	141	190	107	100	40	70	128	161
2005	122	105	112	78	41	92	101	102	59	95	92	50
2004	36	55	52	37	34	41	28	40	33	56	90	116
2003	72	55	58	60	58	75	45	43	22	51	89	45
2002						42	29	36	55	28	24	44

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