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marfans_support_and_chat · Marfans Syndrome support and chat
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Group Information

  • Members: 519
  • Category: Marfan Syndrome
  • Founded: Mar 25, 2002
  • Language: English
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Activity within 7 days:

2 New Messages - New Questions

Description

This site is to help all those who are afflicted with Marfan Syndrome, or are a family member of someone who is afflicted with Marfan syndrome. It should be used to help keep each other informed on the new areas of progress being made through research and technology. Let us help each other through the rough spots of having the disorder. This group is a wonderful caring bunch of individuals. We meet Sunday (7pm?), Wednesday and Friday for night chat from 8-?? pm eastern time. Other chats added as desired, including kid and teen supervised chats. We hope to see you there soon!

Most Recent Messages

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Re: FW: Oregon new dx
Hi Becky, My name is Larie ( Ree for short). We have several fam's in the Portland area and they are starting to get ready for a National Marfan Foundation
Posted - Wed Nov 18, 2009 4:59 am
 larie beck
ty_ree_b
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FW: Oregon new dx
Becky, I'm forwarding this, it looks like it just went to the moderators. We're glad you found us and we will try to help you through questions, ups and down
Posted - Wed Nov 18, 2009 2:38 am
 Iowa Marf
iowamarf
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looking for other
hi i'm a 33 year old woman, i was diagnosed with marfan syndrome when i was 4. i'm looking for others to chat too about how they feel, i'm in scotland, thanks
Posted - Fri Nov 13, 2009 12:33 am
 elitefurball
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Re: Need Some Help!
It's very normal to do exercises, do them, your body will feel better when you exercise. ... From: kherome <kherome@...> Subject:
Posted - Mon Nov 9, 2009 4:30 am
 Monie Luv
monieluv_8
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Re: Need Some Help!
Hi Jessi-My daughter is 18 and she has Marfans too. I have several kids, 2 definately have Marfans, the others are suspected of having it.My kids also have
Posted - Thu Oct 22, 2009 3:51 pm
 Tammy Ranft
tammyranft
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2009 58 90 61 74 57 53 46 33 10 12 4
2008 74 80 88 94 156 58 83 49 59 142 58 51
2007 167 105 152 92 74 56 100 71 86 58 91 166
2006 94 165 103 83 141 190 107 100 40 70 128 161
2005 122 105 112 78 41 92 101 102 59 95 92 50
2004 36 55 52 37 34 41 28 40 33 56 90 116
2003 72 55 58 60 58 75 45 43 22 51 89 45
2002 42 29 36 55 28 24 44
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