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marfans_support_and_chat · Marfans Syndrome support and chat

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Group Information

  • Members: 538
  • Category: Marfan Syndrome
  • Founded: Mar 25, 2002
  • Language: English
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Description

This site is to help all those who are afflicted with Marfan Syndrome, or are a family member of someone who is afflicted with Marfan syndrome. It should be used to help keep each other informed on the new areas of progress being made through research and technology. Let us help each other through the rough spots of having the disorder. This group is a wonderful caring bunch of individuals. We meet Sunday (7pm?), Wednesday and Friday for night chat from 8-?? pm eastern time. Other chats added as desired, including kid and teen supervised chats. We hope to see you there soon!

Most Recent Messages

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Re: Velda
oh Velda im so sorry for your loss and health worries my thoughts are with you at this sad time xx
Posted - Fri May 24, 2013 10:29 am
vickisticki1
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Re: Eyes - Lori and Vicki in England
hi i had this lens put in my right eye in 2008 but sadly its come away again, it didnt give me great vision to drive but at last i could see my kids face with
Posted - Fri May 24, 2013 10:27 am
vickisticki1
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Re: Eyes - Lori and Vicki in England
My response is geared toward Lauara (Lori) and Vicki in England. I am 57 and I have Marfan. I have 5 children and two of them have it for sure. I was legally
Posted - Fri May 24, 2013 4:59 am
Lee Parks
wt_lparks
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Re: advice and help please
dalton447@... Sent from my U.S. Cellular® smartphone ... dalton447@... Sent from my U.S. Cellular® smartphone lori rolder <laurar121@...>
Posted - Fri May 24, 2013 4:40 am
Vickie Whaley
phat_emt
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Re: advice and help please
Hello, My name is Laura and I am 44. I have had many problems with both my eyes. My lenses were both so far dislocated since birth that i never used to see
Posted - Thu May 23, 2013 1:30 pm
lori rolder
laurar121_38
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Message History

Jan Feb Mar Apr May Jun Jul Aug Sep Oct Nov Dec
2013 4 2 2 1 6
2012 11 1 1 17 11 1 2 32
2011 6 15 8 30 3 5 8 8 12 14
2010 14 10 18 6 57 6 12 21 28 58 9 24
2009 58 90 61 74 57 53 46 33 10 12 8 6
2008 74 80 88 94 156 58 83 49 59 142 58 51
2007 167 105 152 92 74 56 100 71 86 58 91 166
2006 94 165 103 83 141 190 107 100 40 70 128 161
2005 122 105 112 78 41 92 101 102 59 95 92 50
2004 36 55 52 37 34 41 28 40 33 56 90 116
2003 72 55 58 60 58 75 45 43 22 51 89 45
2002 42 29 36 55 28 24 44

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