I'm glad this group was made. My daughter, Jaylee, is 3 years old with MSUD. It's a little difficult for us because we live in Hawaii on the tiny island of...
Stacie, Thank you for the letter about your daughter, Jaylee. What a beautiful name! My daughter is named Hailey. She is a 19 mo. old little girl with MSUD....
Hello there, I found this e-group when joining yahoo. I belong to a e- support group also and would like to direct you toward it if you havent found it yet....
Hello, This email message is a notification to let you know that a file has been uploaded to the Files area of the maplesyrupurinediseasemsud group. File...
maplesyrupurinediseas...
maplesyrupurinediseas...
Nov 10, 2003 1:40 am
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what is this all about? maplesyrupurinediseasemsud@yahoogroups.com wrote: Hello, This email message is a notification to let you know that a file has been...
Is it spam? I am not opening it. Celeste ... Do you Yahoo!? Protect your identity with Yahoo! Mail AddressGuard [Non-text portions of this message have been...
I think it is spam. The email itsself is just a notice that something is posted to the website. I didn't go to it. Celeste Battle <celestecbattle@...>...
hey there since this is a small group...thought we could let people know a little more about us... Name: Melinda Person with msud: son christopher Age: 6 and...
... something is posted to the website. I didn't go to it. ... opening it. Celeste ... it from this group and i'm sorry for the inconvienience. thanks ...
... hey thats a good idea My name is Sabrina I have a 3 year old son, Blake whom has MSUD, He weighs 27lbs drinks BCAD2 Formula and he also has an older...
nice to meet you sabrina..where do you guys live...we live in tennesse... melinda ... __________________________________ Do you Yahoo!? Protect your identity...
Melinda McCain <ml5363@...> wrote:nice to meet you sabrina..where do you guys live...we live in tennesse... hey sorry it took so long to reply i havent...
Melinda McCain <ml5363@...> wrote: nice to meet you sabrina..where do you guys live...we live in tennesse... hey sorry it took so long to reply i havent...
sabrina..just wanted to let you know about the big group..a lot more active ..is msud....like 70 or 80 people in that one if you want to joing.. melinda ... ...
Hi, I am Melodie and i found out two days ago that my 15month son, Thor, has MSUD. After spending the past couple of days in the hospital they let us come...
Hi, my name is Lynn and i'm new to this MSUD, i noticed my daughter, which is 16 yrs. now had the maple syrup oder in her urine and didn't really pay any...
Lynn, on the tn/ky border,hello i'd like to try and clue u in on wehat msud really is!!!!, msud is a very serious disease which is a metabolic disorder inwhich...
hi there my names ryan, last week i found out my son has msud when i heard the name i thought it cant be that bad but got worried when a convoy of ambulances...
hello, Your letter brought me back 25 years when my son Brock was born. He is also "Classic " MSUD. We are from the USA, California to be specific and Buffalo,...
Ryan, We live in England (Grimsby) and our son Jorge have been through the same process. He's 3.5 years old now and he's doing fine. We learnt quite a lot in...
Joe, thanks for your reply it was greatly appreciated. Dylan is coming on well now at the moment the only thing is that he will need some phisio on his left...
Ryan, Jorge also has the Classic type. How old is Dylan now and how old was he when he was diagnosticated? ... on well now at the moment the only thing is that...
Hi, I am a 21 yr. female who has classic msud.I am in college trying to do a paper on PKU vs. MSUD the only thing is I don't have enough information. I want...
I have just read your email. I have a 3 year old boy with classic msud. It is good for me to hear you are in college as it gives us hope. We have been very...
Michelle, It was nice to read your email you sent me and I hope that you keep in there and be strong. I went through alot of difficulties trying to cope with ...
It is good to hear from people with the same disease as Jorge. I am afraid I do not know what Thaimin responsive is. Jorge is on Lucine exchanges with Valine...
Hi, I came across this gorup doing a search and I have a few quetions and I am hoping someone can help. I have a 7yo daughter who is developmentally delayed. I...
I know my son has an intermitten case of MSUD. The metabolic rates are off along with pH and other amino acids. I dont know what tests other than blood and...
