Hi, I am Melodie and i found out two days ago that my 15month son, Thor, has MSUD. After spending the past couple of days in the hospital they let us come...
Hi, my name is Lynn and i'm new to this MSUD, i noticed my daughter, which is 16 yrs. now had the maple syrup oder in her urine and didn't really pay any...
Lynn, on the tn/ky border,hello i'd like to try and clue u in on wehat msud really is!!!!, msud is a very serious disease which is a metabolic disorder inwhich...
hi there my names ryan, last week i found out my son has msud when i heard the name i thought it cant be that bad but got worried when a convoy of ambulances...
hello, Your letter brought me back 25 years when my son Brock was born. He is also "Classic " MSUD. We are from the USA, California to be specific and Buffalo,...
Ryan, We live in England (Grimsby) and our son Jorge have been through the same process. He's 3.5 years old now and he's doing fine. We learnt quite a lot in...
Joe, thanks for your reply it was greatly appreciated. Dylan is coming on well now at the moment the only thing is that he will need some phisio on his left...
Ryan, Jorge also has the Classic type. How old is Dylan now and how old was he when he was diagnosticated? ... on well now at the moment the only thing is that...
Hi, I am a 21 yr. female who has classic msud.I am in college trying to do a paper on PKU vs. MSUD the only thing is I don't have enough information. I want...
I have just read your email. I have a 3 year old boy with classic msud. It is good for me to hear you are in college as it gives us hope. We have been very...
Michelle, It was nice to read your email you sent me and I hope that you keep in there and be strong. I went through alot of difficulties trying to cope with ...
It is good to hear from people with the same disease as Jorge. I am afraid I do not know what Thaimin responsive is. Jorge is on Lucine exchanges with Valine...
Hi, I came across this gorup doing a search and I have a few quetions and I am hoping someone can help. I have a 7yo daughter who is developmentally delayed. I...
I know my son has an intermitten case of MSUD. The metabolic rates are off along with pH and other amino acids. I dont know what tests other than blood and...
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin12
ana.warwick1807@...
Nov 10, 2004 11:22 am
33
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
ana.warwick1807@...
Nov 13, 2004 10:39 am
34
Hey people! I am pretty new to the group and I don't mean to be annoying, but I wanted to let all of you know I finally got my webcam back. It took a while to...
WetnWaitin18
ana.warwick1807@...
Nov 17, 2004 2:46 pm
35
Met my fiance here, hehe. Thought I should share it with any other guys who are worried up winding up alone like I was. Check it out...
ana.warwick1807@...
Jun 18, 2005 3:18 am
36
MY NAME IS SONJA NOFSINGER. I'M FROM TAMPA, FL. AND MY DAUGHTER WAS DIAGNOSED W/ THE CLASSIC FORM OF MSUD AT 24 DAYS OLD. FROM WHAT I UNDERSTAND SHE IS THE...
hi my name is nicole, i am 22 years old and i have classical msud but i am thimaine responsive. i wish the best for your daughter and i hope that you get all...
Met my fiance here, hehe. Thought I should share it with any other guys who are worried up winding up alone like I was. Check it out...
ana.warwick1807@...
Jul 20, 2005 10:16 am
39
Hey, Just wanted to see how everyone is.. My son is classic MSUD and is 2 now...Curious if anyone is planning on coming to the symposium for MSUD next...
hello. it is me sonja. my daughter is 6 months and has classic msud. anyway i told my husband about ohio. and we are going to be there next summer. i do...
you can click on the msud link i put in the links..or you can go to msudsupport.org there is another msud yahoo group that has more members.. Melinda ... ...
Hi all. I've just learned last week my daughter has the classic MSUD. My wife and I are still trying to get over the shock. We've been in constant prayer mode...
welcome to the group...my son is classic ..and is a little over 2...it is all scary in the beginning but soon you guys will be pros...if you ever need to ...
Hello! My name is Yuki and my two daughters have classic MSUD. We are from Japan. My daughters are four-years-old and 8-months-old. I just want to introduce...
hi yuki, my name is sonja. i live in florida. my 7 month old daughter has msud. i only have problems getting her to drink her formula when her levels are...
